Gastrointestinal quality of life in children born with gastroschisis.

IF 1.5 3区医学 Q2 PEDIATRICS

Pediatric Surgery International Pub Date : 2024-12-10 DOI:10.1007/s00383-024-05909-4

Matilda Bräutigam, Michaela Dellenmark-Blom, Kate Abrahamsson, Cathrine Gatzinsky, Vladimir Gatzinsky

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引用次数: 0

Abstract

Purpose: The aim was to determine gastrointestinal (GI)-related QoL in children born with gastroschisis (GS).

Methods: Totally, 58/83 families of children (aged 2-18 years) operated for GS at a tertiary pediatric surgical center accepted participation. Children aged 5-18 and one parent (child aged 2-18) completed the Swedish version of the PedsQL™ gastrointestinal symptoms module, evaluating GI-related QoL with 14 different GI-specific scales, norm values for Hirschsprung's disease (HD), esophageal atresia (EA), and functional constipation (FC) that were used for comparison.

Results: Children with GS had significantly lower parent-reported scores on "Gas and bloating" compared with children with EA (77.0 vs 85.5, p = 0.039). In the child report and in the parent report, scores on several GI scales were like those of children with EA. Parents of children with GS had higher scores for 8/14 scales compared to HD and higher scores for 12/14 scales compared to FC. Clinical GS-specific factors for worse GI-QoL were identified, including "Days in ventilator" and "Days with Silo and Patch".

Conclusions: GS has an impact on GI-related QoL, comparable to that in EA, but not to HD or FC. The GS-specific factors of worse QoL show the importance regarding a GS follow-up program including considering clinical factors.

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先天性胃裂患儿的胃肠生活质量。

目的：探讨先天性胃裂（GS）患儿的胃肠道相关生活质量。方法：在某三级儿科外科中心接受GS手术的58/83个家庭（2-18岁）接受调查。5-18岁的儿童和一位家长（2-18岁的儿童）完成了瑞典版的PedsQL™胃肠道症状模块，用14种不同的gi特异性量表评估gi相关的生活质量，用于比较的Hirschsprung病（HD）、食管闭锁（EA）和功能性便秘（FC）的标准值。结果：与EA患儿相比，GS患儿家长报告的“气胀”得分明显低于EA患儿（77.0 vs 85.5, p = 0.039）。在儿童报告和家长报告中，几个GI量表的得分与EA儿童的得分相似。GS儿童的父母在8/14量表上的得分高于HD，在12/14量表上的得分高于FC。确定了GI-QoL恶化的临床gs特异性因素，包括“使用呼吸机的天数”和“使用筒仓和贴片的天数”。结论：GS对gi相关生活质量的影响与EA相当，但与HD或FC无关。生活质量差的GS特异性因素显示了GS随访计划的重要性，包括考虑临床因素。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Pediatric Surgery International 医学-外科

CiteScore

3.00

自引率

5.60%

发文量

215

审稿时长

3-6 weeks

期刊介绍： Pediatric Surgery International is a journal devoted to the publication of new and important information from the entire spectrum of pediatric surgery. The major purpose of the journal is to promote postgraduate training and further education in the surgery of infants and children. The contents will include articles in clinical and experimental surgery, as well as related fields. One section of each issue is devoted to a special topic, with invited contributions from recognized authorities. Other sections will include: -Review articles- Original articles- Technical innovations- Letters to the editor