Christine Noelle Flaherty PhD, RN, Joint Nursing Science Ph.D. Program , Jennifer R. Bail Ph.D., RN (Assistant Professor) , Vicki Winstead Ph.D. (Scientist I) , Patricia A. Carter Ph.D., RN (Professor) , Lenora Smith Ph.D., RN (Associate Professor) , Gwendolyn L. Hooper Ph.D., CRNP (Associate Professor) , Nancy Lerner DNP, RN (Associate Professor) , Rita A. Jablonski Ph.D., CRNP, FAAN, FGSA (Professor)
{"title":"Dementia advance care planning perspectives within an Alabama community: A theory guided qualitative study","authors":"Christine Noelle Flaherty PhD, RN, Joint Nursing Science Ph.D. Program , Jennifer R. Bail Ph.D., RN (Assistant Professor) , Vicki Winstead Ph.D. (Scientist I) , Patricia A. Carter Ph.D., RN (Professor) , Lenora Smith Ph.D., RN (Associate Professor) , Gwendolyn L. Hooper Ph.D., CRNP (Associate Professor) , Nancy Lerner DNP, RN (Associate Professor) , Rita A. Jablonski Ph.D., CRNP, FAAN, FGSA (Professor)","doi":"10.1016/j.gerinurse.2024.11.017","DOIUrl":null,"url":null,"abstract":"<div><div>Advance Care Planning (ACP) is a process that supports decision-making about end-of-life goals. Dementia ACP is recommended during the early stages of the disease to empower the individual living with dementia to express wishes for quality of life before experiencing significant cognitive decline. ACP during early dementia is rare, and hesitancy to initiate difficult and emotional conversations may be a contributing factor to delaying ACP. Effective ACP includes input from the clinician, patient, and family; however, there is limited dementia ACP research that includes all three perspectives. This secondary qualitative data analysis, guided by Social Cognitive Theory, aims to better understand the convergent and divergent views of ACP among dementia clinicians, caregivers, and individuals living with pre-clinical dementia. Study findings support the need for early, frequent, compassionate, and patient-centered ACP conversations that are considerate of the interests, perspectives, and wishes of the individual with dementia and their caregiver.</div></div>","PeriodicalId":56258,"journal":{"name":"Geriatric Nursing","volume":"61 ","pages":"Pages 390-399"},"PeriodicalIF":2.5000,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Geriatric Nursing","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S019745722400421X","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"GERIATRICS & GERONTOLOGY","Score":null,"Total":0}
引用次数: 0
Abstract
Advance Care Planning (ACP) is a process that supports decision-making about end-of-life goals. Dementia ACP is recommended during the early stages of the disease to empower the individual living with dementia to express wishes for quality of life before experiencing significant cognitive decline. ACP during early dementia is rare, and hesitancy to initiate difficult and emotional conversations may be a contributing factor to delaying ACP. Effective ACP includes input from the clinician, patient, and family; however, there is limited dementia ACP research that includes all three perspectives. This secondary qualitative data analysis, guided by Social Cognitive Theory, aims to better understand the convergent and divergent views of ACP among dementia clinicians, caregivers, and individuals living with pre-clinical dementia. Study findings support the need for early, frequent, compassionate, and patient-centered ACP conversations that are considerate of the interests, perspectives, and wishes of the individual with dementia and their caregiver.
期刊介绍:
Geriatric Nursing is a comprehensive source for clinical information and management advice relating to the care of older adults. The journal''s peer-reviewed articles report the latest developments in the management of acute and chronic disorders and provide practical advice on care of older adults across the long term continuum. Geriatric Nursing addresses current issues related to drugs, advance directives, staff development and management, legal issues, client and caregiver education, infection control, and other topics. The journal is written specifically for nurses and nurse practitioners who work with older adults in any care setting.