Chronic dermatoses affect not only sick individuals: a review of family and caregiver burden assessment tools.

IF 1.4 4区医学 Q3 ALLERGY

Postepy Dermatologii I Alergologii Pub Date : 2024-10-01 Epub Date: 2024-07-22 DOI:10.5114/ada.2024.141685

Ewa Wójcik, Piotr K Krajewski, Jacek C Szepietowski

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Abstract

Introduction: The focus in dermatology has shifted from solely treating skin conditions to considering the quality of life (QoL) of patients and their family members.

Aim: To identify and categorise instruments that assess the impact of chronic skin diseases on the QoL of family members and caregivers.

Methods: A narrative review was conducted using the Scopus and Medline databases, with search terms related to QoL, dermatology, and family/caregivers. Articles published up to January 2024 were reviewed, and relevant instruments were categorised.

Results: The search yielded 2799 papers, of which 153 were reviewed in detail. Twenty instruments were identified and categorised into generic, dermatology-specific, and disease-specific tools.

Conclusions: The review highlights the importance of assessing family QoL in dermatology. Integrating these tools into clinical practice can enhance support for family members, improving overall patient care. Further development and refinement of these tools are necessary to capture the full impact on family QoL.

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慢性皮肤病不仅影响病人：家庭和照顾者负担评估工具综述。

导言：目的：对评估慢性皮肤病对家庭成员和护理人员 QoL 影响的工具进行识别和分类：方法：使用 Scopus 和 Medline 数据库进行叙述性综述，检索词涉及 QoL、皮肤病学和家人/照顾者。对截至 2024 年 1 月发表的文章进行了综述，并对相关工具进行了分类：结果：搜索结果显示有 2799 篇论文，对其中 153 篇进行了详细审查。确定了 20 种工具，并将其分为通用工具、皮肤病学专用工具和疾病专用工具：结论：综述强调了评估皮肤科家庭 QoL 的重要性。将这些工具纳入临床实践可以加强对家庭成员的支持，改善对患者的整体护理。有必要进一步开发和完善这些工具，以充分了解其对家庭 QoL 的影响。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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