Demystifying Death: Reflections on End-of-Life Doula Work.

Abstract

End-of-life doulas (EOLDs) represent a portion of a broader mobilization of end-of-life care practitioners to normalize discussions of death and assist dying persons and their caregivers in navigating the dying process. EOLDs primarily focus on creating a supportive environment for the dying and their loved ones. Research on the burgeoning care profession has documented the backgrounds and services of EOLD work; however, literature has overlooked EOLDs' personal reflections on their work. This study seeks to help fill this gap through interviews with 39 EOLDs registered with the International End-of-Life Doula Association (INELDA). Interviewees discussed the rewards, challenges, surprises, and motivations to continue their work, reinforcing previous studies' findings while expanding upon the perspectives of EOLDs in their own words. In sharing their experiences, EOLDs showcase how they facilitate death by respecting and advocating for the wishes of their clients while simultaneously navigating the hardships and joys of their profession.