‘Motivating Implicit Chinese to Express Themselves Is the Biggest Barrier’: A Qualitative Study of Chinese Researchers' Perceptions of Barriers and Facilitators to Patient Engagement in Research

IF 3 3区医学 Q2 HEALTH CARE SCIENCES & SERVICES

Health Expectations Pub Date : 2024-11-21 DOI:10.1111/hex.70112

Lin Yang, Yu-xiao Liu, Bi-xia Wang, Meng-jiao Yu, Wei-Wei Bian, Cai-feng Wang, Hong Ruan

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引用次数: 0

Abstract

Background

Patient Engagement in Research (PER) has demonstrated benefits for patients, researchers and research outcomes. However, China lacks substantial experience in implementing PER. The implementation of PER in China faces unique challenges due to social-cultural differences. This study explores the perspectives of Chinese researchers to identify barriers and facilitators, aiming to guide future PER initiatives and enhance the role of patients in research.

Method

Purposive sampling was employed to recruit clinical researchers with diverse healthcare backgrounds in China. Semi-structured interviews, conducted by a qualified researcher, followed interview guidelines derived from a literature review and pilot study modifications. Thematic analysis was applied using QSR Nvivo 8.0.

Results

A total of 13 participants were included. Five main themes were identified from interview: (1) selection of patients for research engagement, (2) strategies to alleviate the patient burden in implementing PER, (3) strategies to encourage patients for active expression, (4) benefits to attract patient engagement and (5) researcher's preparation.

Conclusion

The cultural trait of ‘reservedness’ in Chinese culture hinders active expression by patients in the research engagement process. Researchers tend to recruit patients with specific characteristics and emphasize the importance of aligning benefits with patient values to motivate engagement. Addressing patient burden is crucial, and researchers should be well-prepared before PER. These findings underscore the necessity of adopting culturally adapted strategies in PER to effectively address specific challenges.

Patient or Public Contribution

The public participated in the interpretation of the interview results, enriching our understanding of the results.

Abstract Image

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激励隐性中国人表达自己是最大的障碍"：中国研究人员对患者参与研究的障碍和促进因素的定性研究》。

背景：研究中的患者参与（PER）已证明对患者、研究人员和研究成果都有好处。然而，中国缺乏实施 PER 的丰富经验。由于社会文化的差异，在中国实施 PER 面临着独特的挑战。本研究探讨了中国研究人员的观点，以确定障碍和促进因素，旨在指导未来的 PER 计划，并加强患者在研究中的作用：方法：采用有目的的抽样方法，在中国招募具有不同医疗背景的临床研究人员。半结构式访谈由一名合格的研究人员进行，并遵循文献综述和试点研究修改后得出的访谈指南。采用 QSR Nvivo 8.0 进行了主题分析：共有 13 人参加了访谈。从访谈中确定了五大主题：(1) 选择参与研究的患者；(2) 在实施 PER 过程中减轻患者负担的策略；(3) 鼓励患者积极表达的策略；(4) 吸引患者参与的好处；(5) 研究人员的准备工作：结论：中国文化中的 "矜持 "特质阻碍了患者在研究参与过程中的积极表达。研究人员倾向于招募具有特定特征的患者，并强调利益与患者价值观相一致对激励参与的重要性。解决患者负担问题至关重要，研究人员应在 PER 前做好充分准备。这些发现强调了在 PER 中采取适应文化的策略的必要性，以有效应对特定挑战：公众参与了访谈结果的解释，丰富了我们对结果的理解。

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来源期刊

Health Expectations 医学-公共卫生、环境卫生与职业卫生

CiteScore

5.20

自引率

9.40%

发文量

251

审稿时长

>12 weeks

期刊介绍： Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including: • Person-centred care and quality improvement • Patients'' participation in decisions about disease prevention and management • Public perceptions of health services • Citizen involvement in health care policy making and priority-setting • Methods for monitoring and evaluating participation • Empowerment and consumerism • Patients'' role in safety and quality • Patient and public role in health services research • Co-production (researchers working with patients and the public) of research, health care and policy Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.