Unveiling missing voices - Lifelong Experiences of fathers parenting autistic sons: An interpretative phenomenological analysis.

IF 5.2 2区心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL

Autism Pub Date : 2024-11-19 DOI:10.1177/13623613241290096

Borbála Gabriella Koltai, Eszter Pados, József Rácz

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引用次数: 0

Abstract

Lay abstract: Being a father of an autistic son is a profound and complex experience. Fathers adapt to their autistic sons' unique needs and are always in search of services to ease uncertainties about their sons' present and future. We interviewed 10 Hungarian fathers who have adult-aged autistic children. We asked them about their experiences raising their autistic sons during childhood and adulthood. Our study focused on fathers of adult-aged sons because most research has studied mothers' experiences of autistic children under 18 years old. It is also essential to know how to be like a father with adult-aged autistic children. Fathers shared their ongoing struggle with uncertainty, always seeking the best possible solutions for their sons. They also talked about how they understand and adapt to autism and accept their sons with their special, autism-related characteristics. The findings of this research provide a deeper understanding of fathers' parenting experience, giving suggestions for professionals on supporting them and making their experiences valuable to the community of parents raising autistic children.

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揭开缺失的声音--父亲养育自闭症儿子的终身经历：解释现象学分析。

内容提要：作为自闭症儿子的父亲，是一种深刻而复杂的体验。父亲们要适应自闭症儿子的独特需求，并一直在寻求服务，以缓解对儿子现在和未来的不确定性。我们采访了 10 位有成年自闭症子女的匈牙利父亲。我们询问了他们在童年和成年后抚养自闭症儿子的经历。我们的研究侧重于成年儿子的父亲，因为大多数研究都是研究母亲抚养 18 岁以下自闭症儿童的经历。了解如何像父亲一样养育成年自闭症儿童也是至关重要的。父亲们分享了他们与不确定性的持续斗争，始终为儿子寻求最佳解决方案。他们还谈到了如何理解和适应自闭症，如何接受儿子与自闭症有关的特殊性。这项研究的结果加深了人们对父亲育儿经验的理解，为专业人士提供了支持父亲的建议，并使他们的经验对抚养自闭症儿童的家长群体具有价值。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Autism PSYCHOLOGY, DEVELOPMENTAL-

CiteScore

9.80

自引率

11.50%

发文量

160

期刊介绍： Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.