Beyond the Queue: Exploring Waiting Practices in the Stories of Patients With Breast Cancer

IF 3 3区医学 Q2 HEALTH CARE SCIENCES & SERVICES

Health Expectations Pub Date : 2024-11-17 DOI:10.1111/hex.70086

Nada Akrouh, Rik Wehrens, Erna Scholtes, Hester van de Bovenkamp

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引用次数: 0

Abstract

Background

Waiting is an important topic in healthcare debates, mostly discussed in the form of waiting lists and waiting times. In this discourse, the experiential element of waiting stays hidden. Understanding the waiting experiences of patients can help to better understand healthcare waiting practices, which have a large impact on patients.

Methods

We performed a thematic analysis on 12 patients' books of women with breast cancer. We focused on the theme of waiting within these stories, through an abductive analysis.

Results

We identified three themes within the waiting practices of patients with breast cancer: (1) Thickening of time, (2) contaminated time and (3) navigating time. The theme thickening of time highlights waiting moments where time is experienced as moving at a very slow pace with intense emotional impact. The theme of contaminated time highlights the waiting processes as an ongoing component of experiencing illness. The theme of navigating time highlights patients' temporal agency, showing their waiting work in the form of strategies for dealing with practical and emotional aspects of waiting.

Discussion

The waiting experiences of patients provide insights into the burden of waiting, which is partly connected to the way healthcare services are organised and the experience of illness. Understanding these multifaceted experiences of patients helps pinpoint areas for healthcare quality improvement.

Patient or Public Contribution

The choice for the theme and approach of this research, waiting, was developed with a citizen science initiative of collecting patient stories.

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超越排队：从乳腺癌患者的故事中探索等待的做法。

背景：等待是医疗保健辩论中的一个重要话题，主要以候诊名单和等待时间的形式进行讨论。在这种讨论中，等待的体验因素被隐藏起来。了解患者的等待经历有助于更好地理解对患者有重大影响的医疗等待做法：我们对 12 本关于乳腺癌女性患者的书籍进行了主题分析。通过归纳分析，我们重点研究了这些故事中的等待主题：结果：我们在乳腺癌患者的等待实践中发现了三个主题：(1) 加厚时间；(2) 污染时间；(3) 驾驭时间。时间加厚 "这一主题强调了在等待过程中，时间以非常缓慢的速度流逝，对患者的情绪产生了强烈的影响。被污染的时间这一主题强调了等待过程是经历疾病的一个持续组成部分。驾驭时间这一主题突出了患者的时间能动性，显示了他们在等待过程中的工作，他们采取了各种策略来处理等待过程中的实际问题和情绪问题：讨论：病人的等待经历让我们了解到等待的负担，这部分与医疗服务的组织方式和疾病体验有关。了解病人这些多方面的经历有助于确定医疗质量改进的领域：本研究的主题和方法 "等待 "是通过收集病人故事的公民科学活动确定的。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Health Expectations 医学-公共卫生、环境卫生与职业卫生

CiteScore

5.20

自引率

9.40%

发文量

251

审稿时长

>12 weeks

期刊介绍： Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including: • Person-centred care and quality improvement • Patients'' participation in decisions about disease prevention and management • Public perceptions of health services • Citizen involvement in health care policy making and priority-setting • Methods for monitoring and evaluating participation • Empowerment and consumerism • Patients'' role in safety and quality • Patient and public role in health services research • Co-production (researchers working with patients and the public) of research, health care and policy Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.