"I am the mother of the kind of child you dread having": Experiences of living with chronic sorrow among parents with a disabled child.

IF 2.5 3区 心理学 Q2 PSYCHOLOGY, CLINICAL
Edith Raap, Katie Lee Weille, Christine Dedding
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引用次数: 0

Abstract

Chronic sorrow involves parents' enduring grief due to their child's disability. This stems not only from the recurring painful reality parents face, which differs from the life they had hoped for their children, families, and themselves but from also being confronted with societal and personal norms and expectations they cannot meet. There is a lack of research on the lived experiences of parents' chronic sorrow. An Interpretative Phenomenological Analysis (IPA) study involving six parents with severely disabled children explored what it is like for parents to confront being "different." Besides sorrow, the parents experienced intense ambiguity, guilt, and uncertainty while navigating societal expectations and their own perceptions of their children. Their ideas of parenthood and their self-identity as parents proved central to their strategies. This study provides insight into the intricacies of this particular aspect of chronic sorrow in parents, with relevance for research and practice.

"我是你最害怕生的那种孩子的母亲":有残疾儿童的父母在长期悲伤中生活的经历。
长期悲伤是指父母因子女的残疾而长期处于悲痛之中。这不仅源于父母所面临的反复出现的痛苦现实,这种现实不同于他们为孩子、家庭和自己所期望的生活,还源于他们所面临的社会和个人规范以及他们无法满足的期望。关于父母长期悲伤的生活经历的研究还很缺乏。一项涉及六位有严重残疾儿童的父母的解释性现象学分析(IPA)研究探讨了父母面对 "与众不同 "时的感受。除了悲伤之外,父母们还经历了强烈的模糊感、负罪感和不确定性,同时还要面对社会的期望和他们自己对孩子的看法。事实证明,他们的为人父母观念和作为父母的自我认同对他们的策略至关重要。本研究深入探讨了父母长期悲伤的这一特殊方面的复杂性,对研究和实践具有现实意义。
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来源期刊
Journal of Health Psychology
Journal of Health Psychology PSYCHOLOGY, CLINICAL-
CiteScore
7.50
自引率
3.10%
发文量
81
期刊介绍: ournal of Health Psychology is an international peer-reviewed journal that aims to support and help shape research in health psychology from around the world. It provides a platform for traditional empirical analyses as well as more qualitative and/or critically oriented approaches. It also addresses the social contexts in which psychological and health processes are embedded. Studies published in this journal are required to obtain ethical approval from an Institutional Review Board. Such approval must include informed, signed consent by all research participants. Any manuscript not containing an explicit statement concerning ethical approval and informed consent will not be considered.
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