Online support groups for family caregivers: A qualitative exploration of social support and engagement

IF 3.5 2区心理学 Q1 PSYCHOLOGY, CLINICAL

British Journal of Health Psychology Pub Date : 2024-11-07 DOI:10.1111/bjhp.12764

Rosemary Daynes-Kearney, Stephen Gallagher

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引用次数: 0

Abstract

Background

This qualitative research explored family caregivers’ engagement and social support in a single online support group (OSG). It sought to answer two research questions: Q1: Was social support evident in the OSG? If so what types and how did these types relate to engagement? Q2: Were elements from the Context, Content and Delivery conceptual framework evident in the OSG? If so, what were the key elements of this group?

Methods

Eighteen semi-structured interviews were carried out with members of a family caregiver OSG in Ireland. Data were analysed using deductive qualitative analysis with a codebook created from one typology of social support and the Context, Content and Delivery conceptual framework for engagement in web-based technologies.

Findings

For Q1, all types of social support were generated in the OSG. All had a positive impact on engagement. Informational support (17/18 respondents) and emotional support (15/18 respondents) were the highest support experienced by the group. For Q2, we found evidence for 11 key elements of the conceptual framework. Myriad sub-elements had positive, negative and mixed impacts on engagement. These elements generally related to positive developments of social support by the respondents.

Conclusion

Drawing together the findings, we present a new framework, the Journey of Engagement and Support in Online Support Groups for Family Caregivers. This maps the stages for engagement and support in an OSG and can be used by practitioners for running OSG and researchers to generate testable hypotheses about the relationship between social support and engagement.

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家庭照顾者在线支持小组：对社会支持和参与度的定性研究。

研究背景本定性研究探讨了家庭照顾者在单个在线支持小组（OSG）中的参与和社会支持情况。研究试图回答两个研究问题：问题 1：OSG 中的社会支持明显吗？如果是，有哪些类型，这些类型与参与度有何关系？问题 2：OSG 是否体现了 "背景、内容和交付 "概念框架中的要素？如果是，该小组的关键要素是什么？对爱尔兰一个家庭照顾者 OSG 的成员进行了 18 次半结构式访谈。采用演绎式定性分析方法对数据进行分析，并根据社会支持类型和参与网络技术的 "背景、内容和交付 "概念框架创建了编码手册：就 Q1 而言，OSG 中产生了所有类型的社会支持。所有这些都对参与产生了积极影响。信息支持（17/18 位受访者）和情感支持（15/18 位受访者）是该小组获得的最高支持。在第二季度，我们发现了概念框架中 11 个关键要素的证据。众多子要素对参与度产生了积极、消极和混合影响。这些要素一般都与受访者在社会支持方面的积极发展有关：综上所述，我们提出了一个新的框架，即家庭照顾者在线支持小组的参与和支持之旅。该框架描绘了参与和支持 OSG 的各个阶段，可供运营 OSG 的从业人员和研究人员用来就社会支持与参与之间的关系提出可检验的假设。

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来源期刊

British Journal of Health Psychology PSYCHOLOGY, CLINICAL-

CiteScore

14.10

自引率

1.30%

发文量

期刊介绍： The focus of the British Journal of Health Psychology is to publish original research on various aspects of psychology that are related to health, health-related behavior, and illness throughout a person's life. The journal specifically seeks articles that are based on health psychology theory or discuss theoretical matters within the field.