Education for people with serious chronic respiratory diseases and their informal caregivers: how to address challenges that impact learning.

IF 16.4 1区化学 Q1 CHEMISTRY, MULTIDISCIPLINARY

Accounts of Chemical Research Pub Date : 2024-12-01 Epub Date: 2024-10-30 DOI:10.1097/SPC.0000000000000719

Anouk J L Muijsenberg, Sarah Houben-Wilke, Martijn A Spruit, Daisy J A Janssen

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引用次数: 0

Abstract

Purpose of review: Shared decision making is crucial in palliative care for people with serious chronic respiratory diseases and their informal caregivers. Patient education is a critical component in this process, as it provides patients and their informal caregivers the necessary knowledge for informed decisions regarding symptom management, coping with breathlessness, and advance care planning. However, education does not automatically lead to acquiring knowledge. This review describes challenges for education for people with serious chronic respiratory diseases and their informal caregivers and describes how learner-centered education can address these.

Recent findings: People with serious chronic respiratory diseases and their informal caregivers face diverse information needs and learning challenges, with low health literacy and cognitive problems being common. Healthcare professionals can facilitate learner-centered education by enhancing motivation for knowledge acquisition by meeting information needs and learning preferences of patients and their informal caregivers, and by ensuring that information is understandable and readable for those with low health literacy and cognitive problems. E-health applications may serve as valuable tools in this process.

Summary: Learner-centered education may enhance knowledge acquisition in people with serious chronic respiratory diseases and their informal caregivers aiming to gain control over symptoms and optimize shared decision making and advance care planning.

查看原文本刊更多论文

严重慢性呼吸系统疾病患者及其非正式护理人员的教育：如何应对影响学习的挑战。

综述目的：共同决策对于严重慢性呼吸系统疾病患者及其非正规护理人员的姑息治疗至关重要。患者教育是这一过程中的关键组成部分，因为它为患者及其非正规护理人员提供了必要的知识，使他们能够就症状管理、呼吸困难的应对和预先护理计划做出明智的决定。然而，教育并不会自动带来知识的获取。本综述描述了针对严重慢性呼吸系统疾病患者及其非正规护理人员的教育所面临的挑战，并介绍了如何通过以学习者为中心的教育来应对这些挑战：最近的研究结果：严重慢性呼吸系统疾病患者及其非正规护理人员面临着不同的信息需求和学习挑战，其中低健康素养和认知问题很常见。医疗保健专业人员可以通过满足患者及其非正规护理人员的信息需求和学习偏好，并确保信息对健康素养低和认知有问题的人来说易懂易读，从而提高获取知识的动力，促进以学习者为中心的教育。总结：以学习者为中心的教育可以提高严重慢性呼吸系统疾病患者及其非正规护理人员的知识获取能力，从而控制症状，优化共同决策和预先护理规划。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Accounts of Chemical Research 化学-化学综合

CiteScore

31.40

自引率

1.10%

发文量

312

审稿时长

2 months

期刊介绍： Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.