Perspectives of international experts and the Danish citizens on the ‘relevant knowledge’ that citizens need for making informed choices about participation in cancer screening: Qualitative study

IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Rikke Nicoline Stokholm , Pia Kirkegaard , Mette Bach Larsen , Henrik Hein Lauridsen , Dawn Stacey , Diane M. Harper , Karen Sepucha , Kirsten McCaffery , Maren Reder , Michael Pignone , Mirjam Fransen , Robert J. Volk , Yvonne Wengström , Adrian Edwards , Berit Andersen
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引用次数: 0

Abstract

Objectives

This study aimed to investigate the perspectives of international experts and Danish citizens on relevant knowledge about population-based breast, colorectal and cervical cancer screening.

Methods

This was a qualitative interview study with focus group interviews with experts and Danish citizens eligible for breast, colorectal and/or cervical cancer screening. Data were collected using semi-structured interview guides, audio-recorded and transcribed verbatim. A thematic analysis was conducted.

Results

Participants were nine international experts from Germany, Canada, the USA, Sweden, the Netherlands and Australia, and 54 citizens from Denmark. Most citizens had 'adequate' or 'problematic' levels of health literacy. Themes that experts and citizens agreed on were: knowledge about the disease and symptoms, practical information about screening, benefits of screening, the option of non-participation and the importance of having numeric information of possible screening outcomes. Experts agreed on the importance of knowledge about the harms of screening, but only a minority of citizens considered this important.

Conclusions

The experts and citizens disagreed on the relevance of knowledge about harms of screening and agreed on other relevant knowledge.

Practice implications

What experts and citizens find important may not align when making informed decisions. Therefore, experts and citizens needs to be involved when developing questionnaires.
国际专家和丹麦公民对 "相关知识 "的看法,公民需要这些知识才能在知情的情况下选择是否参加癌症筛查:定性研究。
研究目的本研究旨在调查国际专家和丹麦公民对基于人群的乳腺癌、结直肠癌和宫颈癌筛查相关知识的看法:这是一项定性访谈研究,对专家和符合乳腺癌、结直肠癌和/或宫颈癌筛查条件的丹麦公民进行了焦点小组访谈。采用半结构化访谈指南收集数据,并进行录音和逐字转录。结果:参与者包括来自德国、加拿大、美国、瑞典、荷兰和澳大利亚的 9 名国际专家,以及来自丹麦的 54 名公民。大多数公民的健康素养水平为 "适当 "或 "有问题"。专家和市民一致认同的主题有:疾病和症状知识、筛查的实用信息、筛查的益处、不参加筛查的选择以及掌握可能的筛查结果数字信息的重要性。专家们一致认为了解筛查危害的重要性,但只有少数公民认为这一点很重要:专家和市民对筛查危害知识的相关性意见不一,但对其他相关知识意见一致:实践意义:在做出知情决定时,专家和市民认为重要的知识可能并不一致。因此,在编制调查问卷时,专家和公民都需要参与进来。
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来源期刊
Patient Education and Counseling
Patient Education and Counseling 医学-公共卫生、环境卫生与职业卫生
CiteScore
5.60
自引率
11.40%
发文量
384
审稿时长
46 days
期刊介绍: Patient Education and Counseling is an interdisciplinary, international journal for patient education and health promotion researchers, managers and clinicians. The journal seeks to explore and elucidate the educational, counseling and communication models in health care. Its aim is to provide a forum for fundamental as well as applied research, and to promote the study of organizational issues involved with the delivery of patient education, counseling, health promotion services and training models in improving communication between providers and patients.
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