The challenge of identifying family carers in general practice at an early stage and measuring their burden: A scoping review of possible tools and their actual use.
Yvonne Marx, Alexander Bauer, Thomas Frese, Susanne Unverzagt
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引用次数: 0
Abstract
Informal care, provided unpaid by family members or friends is a crucial source for providing care at home due to chronic illnesses, disability, or long-lasting health issues. An increasing burden on informal carers largely determines the already proven negative mental and physical health effects. General practitioners are usually responsible for recognizing the effects of persistent burdens on informal carers at an early stage to maintain a functional caring relationship by providing individual support. A scoping review was conducted in four databases (PubMed, LIVIVO, Cochrane Library, and Cumulative Index to Nursing and Allied Health Literature [CINAHL]) until July 31, 2023, to identify studies describing the actual use of tools to identify informal care and measure the burden due to informal care. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews (PRISMA-ScR) guidelines were followed to select studies. A total of 5.686 references were identified, and 59 potentially eligible articles were assessed for inclusion, resulting in the inclusion of five studies published between 2009 and 2019. Instruments were primarily used to measure burden after an intervention; only one study focused on instruments to identify carers in general practice. This review highlights the need for a tool to identify informal carers in general practice, but it is important to consider practice-specific processes and settings. Future research should take a proactive approach to testing, modifying, and implementing an assessment and optimizing framework conditions. A follow-up project should be initiated to evaluate the effectiveness of an adapted identification tool on the burden and health of family carers.
由于慢性病、残疾或长期健康问题,由家人或朋友提供的无偿非正规护理是提供家庭护理的重要来源。非正规照护者的负担日益加重,在很大程度上决定了已经证实的对身心健康的负面影响。全科医生通常有责任及早发现非正式照顾者持续负担的影响,通过提供个人支持来维持正常的照顾关系。截至 2023 年 7 月 31 日,我们在四个数据库(PubMed、LIVIVO、Cochrane Library 和 Cumulative Index to Nursing and Allied Health Literature [CINAHL])中进行了范围界定综述,以确定描述实际使用工具来识别非正规护理和衡量非正规护理造成的负担的研究。在选择研究时,遵循了《系统性综述和元分析扩展报告首选项》(Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews,PRISMA-ScR)指南。共确定了 5.686 篇参考文献,并对 59 篇可能符合条件的文章进行了纳入评估,最终纳入了 2009 年至 2019 年间发表的 5 项研究。研究工具主要用于测量干预措施后的负担;只有一项研究的重点是普通实践中识别照护者的工具。本综述强调需要一种工具来识别全科医生中的非正式照护者,但必须考虑到具体的实践过程和环境。未来的研究应采取积极的方法来测试、修改和实施评估,并优化框架条件。应启动一个后续项目,评估经过调整的识别工具对家庭照顾者的负担和健康的影响。