Early identification and communication in cerebral palsy: Navigating a collaborative approach for neonatal follow-up programmes.

IF 2.4 4区 医学 Q1 PEDIATRICS
Acta Paediatrica Pub Date : 2024-10-14 DOI:10.1111/apa.17458
Paige Terrien Church, Rudaina Banihani, Karen Thomas, Maureen Luther, Brenda Agnew, Amber Makino, Sophie Lam-Damji, Darcy Fehlings
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引用次数: 0

Abstract

Aim: This article will provide a clinical case demonstrating the implementation of early identification and review the tools and findings and the diagnostic approach. We will review highlighted literature on the subject of communicating a diagnosis. While improved function is a critical goal, the process of communicating the diagnosis of CP can be challenging for both parents and providers. It aims to provide insights on the evidence supporting early identification and discusses strategies for effective communication of crucial information.

Methods: The article reviews the literature on communication of a diagnosis.

Results: Thirteen articles were identified relating to the communication of a diagnosis of CP and parent experience. We examine this evidence, leveraging the knowledge of an interdisciplinary team and incorporating feedback from parents.

Conclusion: Strategies for effective communication include engagement with families, community therapy teams and all medical providers. Consistent, individualised, collaborative communication is critical. Awareness of ableism and use of balanced, value-neutral terminology is recommended.

脑瘫的早期识别和沟通:为新生儿跟踪计划的合作方法导航。
目的:本文将提供一个临床案例,展示早期识别的实施情况,并回顾相关工具、研究结果和诊断方法。我们将回顾有关传达诊断结果的重点文献。虽然改善功能是一个关键目标,但对于家长和医疗服务提供者而言,传达 CP 诊断的过程可能具有挑战性。本文旨在就支持早期识别的证据提供见解,并讨论有效传达关键信息的策略:文章回顾了有关诊断沟通的文献:结果:共发现 13 篇与交流 CP 诊断和家长经验有关的文章。我们利用跨学科团队的知识并结合家长的反馈意见,对这些证据进行了研究:有效沟通的策略包括与家庭、社区治疗团队和所有医疗服务提供者进行沟通。一致、个性化、合作性的沟通至关重要。建议提高对能力歧视的认识,并使用平衡、价值中立的术语。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Acta Paediatrica
Acta Paediatrica 医学-小儿科
CiteScore
6.50
自引率
5.30%
发文量
384
审稿时长
2-4 weeks
期刊介绍: Acta Paediatrica is a peer-reviewed monthly journal at the forefront of international pediatric research. It covers both clinical and experimental research in all areas of pediatrics including: neonatal medicine developmental medicine adolescent medicine child health and environment psychosomatic pediatrics child health in developing countries
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