Understanding what it is like to experience pain as you grow up: a poetic meta-ethnography.

IF 5.9 1区 医学 Q1 ANESTHESIOLOGY
PAIN® Pub Date : 2025-01-01 Epub Date: 2024-10-18 DOI:10.1097/j.pain.0000000000003420
Francine Toye, Erin Hannink, Amy Woolverton, Karen L Barker
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引用次数: 0

Abstract

Abstract: A recent Lancet Commission raised concerns about the management of child and adolescent pain. We aimed to undertake a comprehensive review of qualitative research to understand children and adolescent pain experiences across contexts. We used the 7 stages of meta-ethnography to synthesise findings. We combined the strengths of arts-based methods, translating themes into poems in a range of languages. We screened 7471 titles, 464 abstracts, and 302 full texts, including 189 reports (177 unique samples) incorporating 5875 young people. Age range across studies was 2 to 38 years, with 93% including those between the age of 11 and 20 years old. Studies spanned 30 years (1993-2023) with 121 (64%) published in the last 10 years. Almost all (93%) were set-in high-income countries. We report 6 themes focusing on transition to adulthood: (1) I want to stay within the safety of home; (2) don't exclude me from my own care; (3) it might hurt but it's for my own good; (4) I rely on others but I want some independence; (5) I am no longer a child but I am not an adult yet; and (6) I wasn't prepared for the transfer to adult health care. Our findings focus on the complex transition into adulthood and the importance of creating a genuine healthcare partnership with young people by acknowledging their perspectives, creating a safe and supportive environment, and preparing them for the transition to adult pain care. Arts-based methods have the potential to make findings from qualitative evidence syntheses accessible and impactful for compassionate health care.

了解成长过程中的痛苦体验:诗意的元民族志。
摘要:最近的柳叶刀委员会对儿童和青少年疼痛的管理提出了担忧。我们旨在对定性研究进行全面回顾,以了解儿童和青少年在不同情况下的疼痛体验。我们采用元民族志的 7 个阶段来综合研究结果。我们结合了以艺术为基础的方法的优势,将主题转化为各种语言的诗歌。我们筛选了 7471 篇标题、464 篇摘要和 302 篇全文,其中包括 189 篇报告(177 个独特样本),涉及 5875 名青少年。各项研究的年龄范围为 2 到 38 岁,其中 93% 的研究对象年龄在 11 到 20 岁之间。研究时间跨度为 30 年(1993-2023 年),其中 121 项(64%)是在最近 10 年内发表的。几乎所有的研究(93%)都是在高收入国家进行的。我们报告了 6 个关于向成年过渡的主题:(1)我想呆在安全的家里;(2)不要把我排除在自己的护理之外;(3)这可能会伤害我,但这是为了我好;(4)我依赖他人,但我想要一些独立;(5)我不再是个孩子,但我还不是个成年人;以及(6)我没有为转入成人医疗保健做好准备。我们的研究结果集中反映了向成人过渡的复杂性,以及与年轻人建立真正的医疗保健伙伴关系的重要性,即承认他们的观点,创造一个安全和支持性的环境,并让他们为过渡到成人疼痛护理做好准备。以艺术为基础的方法有可能使定性证据综述中的发现变得易于理解,并对富有同情心的医疗保健产生影响。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
PAIN®
PAIN® 医学-临床神经学
CiteScore
12.50
自引率
8.10%
发文量
242
审稿时长
9 months
期刊介绍: PAIN® is the official publication of the International Association for the Study of Pain and publishes original research on the nature,mechanisms and treatment of pain.PAIN® provides a forum for the dissemination of research in the basic and clinical sciences of multidisciplinary interest.
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