Cultural adaptation, validity and reliability of the Turkish version of north star ambulatory assessment.

IF 2 4区医学 Q3 CLINICAL NEUROLOGY

Acta neurologica Belgica Pub Date : 2024-10-22 DOI:10.1007/s13760-024-02670-2

Güllü Aydın-Yağcıoğlu, Numan Bulut, Fatma Uğur, Öznur Yılmaz, İpek Alemdaroğlu-Gürbüz

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引用次数: 0

Abstract

Purpose: The North Star Ambulatory Assessment (NSAA) is a functional motor outcome measure originally developed for patients with Duchenne muscular dystrophy (DMD). The aim of this study was to perform the cultural adaptation and investigate the validity and reliability of the Turkish version of the NSAA (T-NSAA) in DMD.

Methods: After translation process, internal consistency, interrater and test-retest reliability of the NSAA were determined by using the Cronbach Alpha Coefficient and Intraclass Correlation Coefficient (ICC), respectively. Absolute reliability was determined by using the Standard Error of Measurement (SEM) with minimal detectable change at 95% limits of confidence (MDC₉₅). Lower limb functionality of children was evaluated by Vignos Lower Extremity Scale (VLERS). To establish convergent validity, the correlations between T-NSAA and Motor Function Measure (MFM-32), 6-minute walk test (6-MWT), and VLERS were analyzed by using the Spearman's correlation coefficient.

Results: The study was completed with 86 patients with DMD whose age were mean 104.56 ± 24.66 months. The internal consistency (Cronbach's α = 0.94), intra-reliability (ICC = 0.977) and inter-reliability (ICC = 0.972) of T-NSAA were excellent. SEM and MDC values were low indicating satisfactory absolute agreement (< %10). The T-NSAA had strong correlations with the MFM-total score, 6-MWT, and VLERS (p < 0.01).

Conclusion: T-NSAA is a valid and reliable tool to assess ambulatory status of Turkish-speaking DMD population.

Clinical trial number: NCT05549999, Date of registration: September 19, 2022.

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北斗星流动评估土耳其版的文化适应性、有效性和可靠性。

目的：北辰非卧床评估（NSAA）最初是为杜氏肌营养不良症（DMD）患者开发的一种功能性运动结果测量方法。本研究旨在对土耳其版 NSAA（T-NSAA）进行文化适应性调整，并调查其在 DMD 患者中的有效性和可靠性：翻译过程结束后，分别使用克朗巴赫阿尔法系数（Cronbach Alpha Coefficient）和类内相关系数（Intraclass Correlation Coefficient，ICC）确定了 NSAA 的内部一致性、研究者间可靠性和测试-再测试可靠性。绝对信度采用标准测量误差（SEM）和 95% 置信度下的最小可检测变化（MDC95）来确定。儿童下肢功能采用维格诺斯下肢量表（VLERS）进行评估。为了建立收敛效度，研究人员使用斯皮尔曼相关系数分析了T-NSAA与运动功能测量（MFM-32）、6分钟步行测试（6-MWT）和VLERS之间的相关性：86名DMD患者完成了研究，他们的平均年龄为（104.56 ± 24.66）个月。T-NSAA 的内部一致性（Cronbach's α = 0.94）、内部可信度（ICC = 0.977）和内部可信度（ICC = 0.972）均非常好。SEM 和 MDC 值较低，表明绝对一致性令人满意（< %10）。T-NSAA 与 MFM 总分、6-MWT 和 VLERS 有很强的相关性（p 结论：T-NSAA 是一种有效且可靠的测量方法：T-NSAA是一种有效、可靠的工具，可用于评估讲土耳其语的DMD人群的活动状态：临床试验编号：NCT05549999，注册日期：2022 年 9 月 19 日：临床试验编号：NCT05549999，注册日期：2022年9月19日。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Acta neurologica Belgica 医学-临床神经学

CiteScore

4.20

自引率

3.70%

发文量

300

审稿时长

6-12 weeks

期刊介绍： Peer-reviewed and published quarterly, Acta Neurologica Belgicapresents original articles in the clinical and basic neurosciences, and also reports the proceedings and the abstracts of the scientific meetings of the different partner societies. The contents include commentaries, editorials, review articles, case reports, neuro-images of interest, book reviews and letters to the editor. Acta Neurologica Belgica is the official journal of the following national societies: Belgian Neurological Society Belgian Society for Neuroscience Belgian Society of Clinical Neurophysiology Belgian Pediatric Neurology Society Belgian Study Group of Multiple Sclerosis Belgian Stroke Council Belgian Headache Society Belgian Study Group of Neuropathology