[Position paper of the Austrian Society for Rheumatology and the Austrian Society for Pneumology on the diagnosis and treatment of sarcoidosis 2024].

IF 16.4 1区化学 Q1 CHEMISTRY, MULTIDISCIPLINARY

Accounts of Chemical Research Pub Date : 2024-10-01 Epub Date: 2024-10-09 DOI:10.1007/s00508-024-02444-z

Georg Sterniste, Klaus Hackner, Florentine Moazedi-Fürst, Marie Grasl, Marco Izdko, Guangyu Shao, Claudia Guttmann-Ducke, Emina Talakić, Helmut Prosch, Sylvia Lohfink-Schumm, Michael Gabriel, Clarice Lim, Johann Hochreiter, Brigitte Bucher, Barbara C Böckle, Hans Peter Kiener, Christina Duftner, Kastriot Kastrati, Eva Rath, Marion Funk, Judith Löffler-Ragg, Monika Steinmaurer, Gabor Kovacs, Nicolas Verheyen, Holger Flick, Marlies Antlanger, Gerhard Traxler, Elisabeth Tatscher, Ralf Harun Zwick, David Lang

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引用次数: 0

Abstract

In many cases sarcoidosis is a multisystemic disease that requires interdisciplinary medical cooperation in the diagnostics, treatment and medical care during follow-up. Due to the often chronic course, it is of utmost importance to include patients with their priorities and wishes at an early stage and extensively in disease management and to establish a shared decision making whenever possible. In the process of writing this joint position paper, the expert group on interstitial and orphan lung diseases of the Austrian Society for Pulmonology and the working group on rheumatological lung disorders of the Austrian Society for Rheumatology and Rehabilitation sought to include patient advocacy groups as well as experts for rare organ manifestations of sarcoidosis. This position paper is not only meant to reflect current scientific and clinical standards but should also focus the national expertise and by networking and exchange to be a first step to strengthen cooperation between stakeholders to ultimately improve care for patients with sarcoidosis.

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[奥地利风湿病学学会和奥地利肺病学会关于 2024 年肉样瘤病诊断和治疗的立场文件]。

在许多情况下，肉样瘤病是一种多系统疾病，需要在诊断、治疗和随访期间进行跨学科医疗合作。由于肉样瘤病的病程通常较长，因此，在疾病管理的早期阶段就将患者的优先事项和意愿广泛纳入其中，并尽可能建立共同决策机制至关重要。在撰写这份联合立场文件的过程中，奥地利肺病学会的间质性肺病和孤儿肺病专家组以及奥地利风湿病学和康复学会的风湿性肺部疾病工作组寻求将患者权益团体以及肉样瘤病罕见器官表现方面的专家纳入其中。这份立场文件不仅要反映当前的科学和临床标准，还应集中各国的专业知识，并通过联网和交流成为加强利益相关者之间合作的第一步，最终改善对肉样瘤病患者的护理。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Accounts of Chemical Research 化学-化学综合

CiteScore

31.40

自引率

1.10%

发文量

312

审稿时长

2 months

期刊介绍： Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.