Barriers to identifying and addressing health-related social needs in cancer care: Patient and patient navigator perspectives

IF 2 Q3 HEALTH POLICY & SERVICES
Tilicea Henry , Michael Hayes , Caroline D. Eisele , Susan Veldheer , Sophia I. Allen , Brianna Hoglen , Kenneth R. Houser , Eugene J. Lengerich , Sol M. Rodriguez-Colon , Amy C. Jenkins , Andrea L. Hobkirk
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引用次数: 0

Abstract

Background

The study aimed to gain insight into the experiences of patients with cancer and survivors regarding the integration of social needs assessment into their care, while also gathering perspectives from patient navigators on the barriers to obtaining and utilizing social needs information during cancer care, which taken together may influence cancer care policies. By comparing the perspectives of patients and navigators, the study sought to inform best practices for integrating, identifying, and addressing social needs to improve patient experiences and outcomes.

Methods

We conducted qualitative interviews and self-report surveys involving patients with cancer, providers, and patient navigators or care coordinators, seeking their insights and firsthand experiences related to health-related social needs in cancer care. Interviews were transcribed, separated into memos of main themes based on deductive coding, and further analyzed for new emergent themes using inductive coding.

Results

The present analysis focuses solely on the perspectives of 20 patient navigators and 21 patients. Qualitative analyses revealed two overarching themes: Theme 1: Personal and health system-related factors may create barriers for patients to disclose health-related social needs information during cancer care; and Theme 2: When social needs are identified, it is best practice to acknowledge and address social needs through referrals, resources, timely follow-up, and continued care coordination. Key barriers include individual beliefs and attitudes, concerns regarding privacy and sensitivity of questions, uncertainties about the outcomes of disclosing information, and patient-provider relationships and trust.

Conclusion

Drawing upon the perspectives of patients and patient navigators provided valuable insight into the challenges associated with acquiring information on social needs. Their viewpoints presented feasible solutions to overcome barriers through early acknowledgment of patient needs, timely resource provision, and maintaining consistent follow-up actions. Additionally, it enhanced understanding of the pivotal role patient navigators play in oncology, serving as crucial links between screening for health-related social needs and addressing individual patient requirements.

Policy Summary

The policies and policy improvements our paper seeks to impact include: inequalities in cancer care and health-related social needs of cancer.
在癌症护理中识别和解决与健康相关的社会需求的障碍:患者和患者导航员的观点。
研究背景该研究旨在深入了解癌症患者和幸存者在将社会需求评估纳入其护理过程中的经验,同时收集患者导航员对在癌症护理过程中获取和利用社会需求信息的障碍的看法,综合起来可能会影响癌症护理政策。通过比较患者和导航员的观点,该研究试图为整合、识别和解决社会需求的最佳实践提供信息,以改善患者的体验和治疗效果:我们对癌症患者、医疗服务提供者、患者导航员或护理协调员进行了定性访谈和自我报告调查,以寻求他们对癌症护理中与健康相关的社会需求的见解和第一手经验。访谈内容均已转录,并在演绎编码的基础上将其分为主要主题备忘录,然后使用归纳编码进一步分析新出现的主题:本分析只侧重于 20 名患者导航员和 21 名患者的观点。定性分析揭示了两个首要主题:主题 1:个人和医疗系统相关因素可能会对患者在癌症护理期间披露与健康相关的社会需求信息造成障碍;主题 2:当社会需求被确定后,最好的做法是通过转诊、资源、及时跟进和持续的护理协调来承认和解决社会需求。主要障碍包括个人信仰和态度、对隐私和问题敏感性的担忧、对披露信息结果的不确定性以及患者与医疗服务提供者之间的关系和信任:从患者和患者导航员的角度出发,我们可以深入了解与获取社会需求信息相关的挑战。他们的观点提出了可行的解决方案,通过尽早确认患者需求、及时提供资源和保持持续的后续行动来克服障碍。此外,它还加深了人们对患者导航员在肿瘤学中发挥的关键作用的理解,他们是筛查与健康相关的社会需求和满足患者个人需求之间的重要纽带。政策摘要:我们的论文试图影响的政策和政策改进包括:癌症护理中的不平等现象和癌症的健康相关社会需求。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of Cancer Policy
Journal of Cancer Policy Medicine-Health Policy
CiteScore
2.40
自引率
7.70%
发文量
47
审稿时长
65 days
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