Practices for promoting a child's best interests in paediatric rehabilitation - Perspectives of professionals and parents.

IF 1.3 4区 医学 Q3 NURSING
Nea Vänskä, Salla Sipari, Leena Haataja
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引用次数: 0

Abstract

Practices for promoting a child's best interests in rehabilitation are not sufficiently understood. This study describes the practices from the perspectives of professionals and parents of children with disabilities. We conducted 11 interviews: 5 in focus groups with professionals (n = 27 [69%]), 3 with parents (n = 9 [23%]), and 3 individual interviews of paediatric neurologists (n = 3 [8%]). We used a qualitative approach, which included inductive content analysis, to examine the transcribed interview data. The practices for promoting a child's best interests consisted of collective framing of child-specific rehabilitation, fostering a fulfilling daily life for the child, and ensuring appropriate rehabilitation. This was enhanced by using child-specific practices and comprehensively understanding the child's rehabilitation in everyday life but was hindered by the absence of an established process and guidelines. The results highlighted substantial challenges in collaboration aligned with the child's best interests, enabling the child's active participation, and addressing the individual needs of the child and family. Promoting best interests through family-professional partnerships by using a systemic and ecological approach could guide the rehabilitation process and ensure the child's right to participate.

在儿科康复中促进儿童最大利益的做法--专业人员和家长的观点。
在康复过程中促进儿童最大利益的做法尚未得到充分理解。本研究从专业人士和残疾儿童家长的角度描述了这些做法。我们进行了 11 次访谈:其中 5 次是与专业人员(n = 27 [69%])进行的焦点小组访谈,3 次是与家长(n = 9 [23%])进行的焦点小组访谈,3 次是与儿科神经学家(n = 3 [8%])进行的个别访谈。我们采用了定性方法,包括归纳内容分析,来研究转录的访谈数据。促进儿童最佳利益的做法包括集体制定针对儿童的康复方案、为儿童创造充实的日常生活以及确保适当的康复。通过采用针对儿童的做法和全面了解儿童在日常生活中的康复情况,这种做法得到了加强,但由于缺乏既定的程序和指导方针,这种做法受到了阻碍。结果凸显了在符合儿童最大利益的合作、让儿童积极参与以及满足儿童和家庭的个人需求方面所面临的巨大挑战。采用系统和生态方法,通过家庭与专业人员的伙伴关系促进最大利益,可以指导康复进程并确保儿童的参与权。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of Child Health Care
Journal of Child Health Care NURSING-PEDIATRICS
CiteScore
4.10
自引率
15.80%
发文量
60
审稿时长
>12 weeks
期刊介绍: Journal of Child Health Care is a broad ranging, international, professionally-oriented, interdisciplinary and peer reviewed journal. It focuses on issues related to the health and health care of neonates, children, young people and their families, including areas such as illness, disability, complex needs, well-being, quality of life and mental health care in a diverse range of settings. The Journal of Child Health Care publishes original theoretical, empirical and review papers which have application to a wide variety of disciplines.
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