Understanding the needs of children and young people with food hypersensitivities

IF 5.8 2区医学 Q1 ALLERGY

Annals of Allergy Asthma & Immunology Pub Date : 2025-01-01 DOI:10.1016/j.anai.2024.09.013

Holly Tallentire PsychD , Heather Maddison-Roberts PsychD , Rose-Marie Satherley PhD , Lucy S. Hale PsychD , Christina J. Jones PhD

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引用次数: 0

Abstract

Background

Research has highlighted the psychosocial impact of living with food hypersensitivities (FHS) on children and young people (CYP). However, there is a paucity of qualitative data from CYP themselves in terms of the support they would like to receive to improve their psychological well-being.

Objective

To further understand firsthand the experiences of CYP with FHS including the challenges they face and to inform structural changes in how their psychological well-being is supported.

Methods

CYP aged 8 to 17 years were recruited with self-reported food allergy or celiac disease and asked about their experiences of living with and the psychological impact of FHS, through online, semistructured interviews. Interviews were transcribed verbatim, and data were analyzed using reflexive thematic analysis.

Results

A total of 25 CYP participated in the interviews. Three themes were generated, which addressed an aspect of change that CYP felt would enable support and improve their well-being: desire to feel heard, need for control, and appreciation of the severity of their FHS.

Conclusion

This is the first study to investigate what CYP with FHS would find beneficial for their psychological well-being with recommendations provided as to how these may be implemented across various systems. Recommendations include health professionals being more aware of the psychosocial impact from diagnosis, schools being more open and consistent with FHS management strategies, and friends being educated on the management of FHS.

查看原文本刊更多论文

了解对食物过敏的儿童和青少年的需求：定性研究。

背景：研究强调了食物过敏症（FHS）对儿童和青少年（CYP）的社会心理影响。然而，从儿童和青少年自身获得的有关他们希望获得哪些支持以改善其心理健康的定性数据却很少：研究目的：本研究旨在进一步了解患有家庭健康系统的青少年的亲身经历，包括他们所面临的挑战，从而为支持他们心理健康的结构性变革提供信息：通过在线半结构化访谈，招募了自称患有食物过敏症或乳糜泻的 8-17 岁青少年，询问他们有关食物过敏症的生活经历和心理影响。访谈内容逐字记录，并采用反思性主题分析法对数据进行分析：25 名青少年参加了访谈。访谈中产生了三个主题，分别涉及儿童青少年认为能够提供支持和改善其福祉的变革方面：渴望被倾听、需要控制以及认识到其家庭健康服务的严重性：这项研究首次调查了患有家庭健康系统的青少年认为哪些因素对他们的心理健康有益，并就如何在各种系统中实施这些因素提出了建议。这些建议包括：医疗专业人员应更多地了解诊断对社会心理造成的影响；学校应更开放、更一致地实施家庭健康服务管理策略；朋友应接受有关家庭健康服务管理的教育。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Annals of Allergy Asthma & Immunology 医学-过敏

CiteScore

6.50

自引率

6.80%

发文量

437

审稿时长

33 days

期刊介绍： Annals of Allergy, Asthma & Immunology is a scholarly medical journal published monthly by the American College of Allergy, Asthma & Immunology. The purpose of Annals is to serve as an objective evidence-based forum for the allergy/immunology specialist to keep up to date on current clinical science (both research and practice-based) in the fields of allergy, asthma, and immunology. The emphasis of the journal will be to provide clinical and research information that is readily applicable to both the clinician and the researcher. Each issue of the Annals shall also provide opportunities to participate in accredited continuing medical education activities to enhance overall clinical proficiency.