Health and Well-being of Family ('Ohana) Caregivers of Native Hawaiian and Pacific Islander Adults Living with Alzheimer's Disease and Related Dementias.

IF 16.4 1区化学 Q1 CHEMISTRY, MULTIDISCIPLINARY

Accounts of Chemical Research Pub Date : 2024-09-30 DOI:10.1177/10436596241286232

Alexandra Malia Jackson, Clemma Jacobsen Muller, Scott K Okamoto, Raven H Weaver, Steffi M Kim, Magdalena Haakenstad, Cortney Pfeaster, Zowey Cachola, Ashley Oshiro, Kacyn Ideue, Nancy Schoenberg, Ka'imi Sinclair

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引用次数: 0

Abstract

Introduction: We aimed to describe the health and well-being of family caregivers of Native Hawaiian and Pacific Islander (NHPI) adults living with Alzheimer's disease and related dementias (ADRD), explore cultural values related to caregiving, and characterize barriers and facilitators to their health and well-being.

Methodology: Caregivers of NHPIs living with ADRD were recruited from across the United States to complete a multimethod study including a survey followed by an interview about their health and well-being.

Results: Eleven participants completed surveys, six of whom completed an interview. Themes included caring as a community, lōkahi (balance), and the importance of sleep, food, and physical activity. Cultural values included connection to cultural practices, kūpuna (elders) as cultural knowledge holders, and the kuleana (responsibility) of caregiving.

Discussion: Caregiving for an NHPI adult living with ADRD occurs beyond the dyad, and is a matter of family and community. Culturally-based interventions offered through community and healthcare organizations may be critical to promoting caregiver health.

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夏威夷原住民和太平洋岛民老年痴呆症及相关痴呆症患者的家庭（'Ohana）照顾者的健康和福祉。

导言：我们的目的是描述夏威夷原住民和太平洋岛民（NHPI）成年阿尔茨海默病和相关痴呆症（ADRD）患者的家庭照顾者的健康和福祉，探索与照顾相关的文化价值观，并描述影响他们健康和福祉的障碍和促进因素：从美国各地招募了患有 ADRD 的非华裔美国人的照顾者，让他们完成一项多方法研究，其中包括一项调查，然后就他们的健康和福祉进行访谈：11 名参与者完成了调查，其中 6 人完成了访谈。主题包括社区关怀、lōkahi（平衡）以及睡眠、食物和体育锻炼的重要性。文化价值观包括与文化习俗的联系、作为文化知识持有者的 kūpuna（长者）以及护理的 kuleana（责任）：讨论：对患有 ADRD 的非华裔美国人成年人的照顾超出了两人的范围，是家庭和社区的事情。社区和医疗保健组织提供的基于文化的干预措施可能对促进护理人员的健康至关重要。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Accounts of Chemical Research 化学-化学综合

CiteScore

31.40

自引率

1.10%

发文量

312

审稿时长

2 months

期刊介绍： Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.