Mapping the Landscape of Those Left Behind When a Person With Dementia Dies: Roles of Race and Ethnicity.

IF 1.8 4区医学 Q3 CLINICAL NEUROLOGY

Alzheimer Disease & Associated Disorders Pub Date : 2024-09-23 DOI:10.1097/WAD.0000000000000645

Zachary G Baker, SeungYong Han, Justine S Sefcik, Darina V Petrovsky, Kris Pui Kwan Ma, Matthew Lee Smith, Juanita-Dawne R Bacsu, Zahra Rahemi, Joseph Saenz

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引用次数: 0

Abstract

Introduction: People with dementia can have many family and friends who might be affected by their deaths. Pursuing the long-term aim of understanding how dementia deaths affect close family and friends, this project lays groundwork through estimates of who those close family and friends are, with special attention to race and ethnicity.

Method: Regression models estimated associations between dementia, race/ethnicity, and close family and friend network size, controlling for age, sex, education, marital status, and household wealth for 1386 deceased people with dementia from the Health and Retirement Study (2004 to 2018).

Results: Persons with dementia had an average of 9.4 close family and friends at death. But patterns of close family and friends were different among non-Latino Black (10.8), Latino (9.9), and non-Latino White (9.2) people with dementia at death. Notably, non-Latino White persons with dementia had the fewest close family (3.7), followed by non-Latino Black (5.1), and Latino (7.7) persons with dementia.

Discussion: Knowing who might be affected by dementia deaths is the first step to explore how dementia-related deaths impact close family and friends. Future work can now sample bereaved family and friends of people with dementia to explore their experiences and develop culturally appropriate supports.

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绘制痴呆症患者去世后留守人员的分布图：种族和民族的作用。

导言：痴呆症患者可能有很多家人和朋友，他们的死亡可能会影响到这些人。本项目的长期目标是了解痴呆症患者的死亡对近亲属和朋友的影响，通过估算这些近亲属和朋友的身份奠定基础，并特别关注种族和民族：回归模型估算了《健康与退休研究》（Health and Retirement Study，2004-2018 年）中 1386 名痴呆症患者的痴呆症、种族/民族、近亲属和朋友网络规模之间的关联，同时控制了年龄、性别、教育程度、婚姻状况和家庭财富：痴呆症患者去世时平均有 9.4 个亲密的家人和朋友。但非拉丁裔黑人（10.8 人）、拉丁裔（9.9 人）和非拉丁裔白人（9.2 人）痴呆症患者死亡时的亲密亲友模式有所不同。值得注意的是，非拉丁裔白人痴呆症患者的近亲（3.7）最少，其次是非拉丁裔黑人（5.1）和拉丁裔（7.7）痴呆症患者：讨论：了解哪些人可能会受到痴呆症死亡的影响是探索痴呆症相关死亡如何影响近亲属和朋友的第一步。今后的工作可以对痴呆症患者的遗属和朋友进行抽样调查，以探索他们的经历并开发适合其文化的支持。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Alzheimer Disease & Associated Disorders 医学-病理学

CiteScore

3.10

自引率

4.80%

发文量

期刊介绍： Alzheimer Disease & Associated Disorders is a peer-reviewed, multidisciplinary journal directed to an audience of clinicians and researchers, with primary emphasis on Alzheimer disease and associated disorders. The journal publishes original articles emphasizing research in humans including epidemiologic studies, clinical trials and experimental studies, studies of diagnosis and biomarkers, as well as research on the health of persons with dementia and their caregivers. The scientific portion of the journal is augmented by reviews of the current literature, concepts, conjectures, and hypotheses in dementia, brief reports, and letters to the editor.