Negative and Positive Experiences During the COVID-19 Pandemic in Canadians With Developmental Disabilities: A One-Year Ontario-Based Survey

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-09-11 DOI:10.1111/jar.13300

Caroline Kassee, Patrick Jachyra, Vijitha Mahalingam, Ami Tint, Hsiang-Yuan Lin, Stephanie H. Ameis, Adriana Di Martino, Yona Lunsky, Meng-Chuan Lai

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Abstract

Purpose

Understanding the experiences of people with developmental disabilities during the initial period of COVID-19 pandemic.

Methods

Individuals with developmental disabilities and their caregivers completed baseline and up to five follow-up online surveys using the CRISIS-AFAR measures, between July 2020 and September 2021. We used qualitative (thematic analysis) and quantitative (MANOVA) analytic methods.

Results

One hundred and eighteen participants (64 caregivers on individuals 6–62 years, 54 self-reporting individuals aged 17–55 years) completed baseline survey; 46 participants (23 caregivers, 23 self-reporting adults) completed ≥1 follow-up. Qualitative themes included uncertainty, and negative and positive influences on behaviours and routines, daily life and mental wellness. Those experiencing positive impacts did not stably perceive so longitudinally.

Conclusions

Despite both negative and positive influences on individuals with developmental disabilities and their families, the prolonged pandemic had wide-ranging repercussions. Emergency preparedness planning should consider the disruptive effects of public health measures on routine and support for this vulnerable population.

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有发育障碍的加拿大人在 COVID-19 大流行期间的消极和积极经历：基于安大略省的一年期调查

目的了解发育障碍人士在 COVID-19 大流行初期的经历。方法在 2020 年 7 月至 2021 年 9 月期间，发育障碍人士及其照顾者使用 CRISIS-AFAR 测量方法完成基线调查和多达五次的后续在线调查。我们采用了定性（主题分析）和定量（MANOVA）分析方法。结果 118 名参与者（64 名 6-62 岁患者的照顾者，54 名 17-55 岁自我报告者）完成了基线调查；46 名参与者（23 名照顾者，23 名自我报告的成年人）完成了≥1 次跟踪调查。定性主题包括不确定性，以及对行为和常规、日常生活和心理健康的消极和积极影响。经历过积极影响的人在纵向上并不稳定。结论尽管大流行病对发育障碍人士及其家庭既有消极影响也有积极影响，但它还是产生了广泛的反响。应急准备规划应考虑到公共卫生措施对这一弱势群体的日常工作和支持的破坏性影响。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.