A Patient and Public Engagement Project to Inform Dementia Care in a UK Hospital Trust

IF 3 3区医学 Q2 HEALTH CARE SCIENCES & SERVICES

Health Expectations Pub Date : 2024-09-10 DOI:10.1111/hex.70024

Rachel K. Marrow, Camille Cronin, Victor Ashby, Thomas Currid, Marie Alexander

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Abstract

Introduction

The increasing prevalence of dementia in the United Kingdom presents significant challenges for healthcare, with projections estimating over a million affected individuals by 2025, costing the NHS £6.3 billion annually. Hospital admissions among dementia patients are common, occupying about 25% of UK hospital beds and leading to prolonged stays and diminished health outcomes.

Method

This paper presents the opening stages, part of a larger project where Patient and Public Involvement and Engagement (PPIE) was employed to understand and navigate what it means for hospital care for a person living with dementia. To understand hospital care for dementia patients, focus groups were conducted through dementia cafés in Essex and Suffolk from February to July 2023 engaging patients, carers and family members.

Results

Recognised processes for reporting PPIE and thematic analysis were used and identified six themes and 21 subthemes regarding hospital care: individualised care, role of carers, basic care, interpersonal communication, information sharing and staffing.

Discussion

The results from the PPIE will be used to inform and work with stakeholders through the next phases of the project, which involves examining care processes in the hospital, identifying touchpoints and evaluating these areas. The project continues to be informed by stakeholders including people living with dementia, carers and staff. Additionally, the results may inform other service providers for care enhancements, processes and delivery.

Conclusion

Moving forward, the study emphasises the importance of building collaborative relationships with stakeholders involved in dementia care. Additionally, it provides insights to focus areas that are fundamental for acute care organisations when delivering care to people living with dementia. By incorporating insights from PPIE, this project seeks to identify inequalities in dementia care services, improve hospital care for people living with dementia, fostering a more inclusive and supportive healthcare environment.

Patient or Public Contribution

The purpose of the study was to explore the most important issues around hospital care for people with dementia, their carers and families. Persons living with dementia, carers and family members were involved in the study through community dementia cafés and recruited to take part in focus groups to discuss hospital care for patients with dementia. The design of questions and materials for the discussions was developed through consultation with the university department's service user lead and dementia specialist and reviewed by a service user member living with dementia. A pilot focus group was conducted with a group of carers. We worked with the dementia café managers to coordinate recruitment and a suitable environment to run the focus groups.

Trial Registration

Not applicable.

Abstract Image

查看原文本刊更多论文

英国一家医院托管机构的痴呆症护理信息患者与公众参与项目

导言：在英国，痴呆症的发病率越来越高，这给医疗保健带来了巨大的挑战，据预测，到 2025 年，受痴呆症影响的患者将超过一百万人，每年将使英国国家医疗服务系统（NHS）的成本增加 63 亿英镑。痴呆症患者入院治疗很常见，占据了英国约 25% 的病床，导致住院时间延长和健康状况下降。方法本文介绍了一个大型项目的开端阶段，该项目采用了 "患者与公众参与"（Patient and Public Involvement and Engagement，PPIE）的方法来了解和引导医院对痴呆症患者的护理。为了解医院对痴呆症患者的护理情况，2023 年 2 月至 7 月期间，通过埃塞克斯郡和萨福克郡的痴呆症咖啡馆开展了焦点小组活动，吸引了患者、护理人员和家庭成员的参与。结果采用了公认的 PPIE 报告流程和主题分析，确定了有关医院护理的 6 个主题和 21 个次主题：个性化护理、护理者的角色、基本护理、人际沟通、信息共享和人员配置。讨论 PPIE 的结果将用于为项目下一阶段提供信息，并与利益相关者合作，包括检查医院的护理流程、确定接触点并对这些领域进行评估。包括痴呆症患者、照护者和员工在内的利益相关者将继续为该项目提供信息。此外，研究结果还可为其他服务提供商提供有关护理改进、流程和交付的信息。结论展望未来，本研究强调了与痴呆症护理相关方建立合作关系的重要性。此外，研究还为急症护理机构在为痴呆症患者提供护理服务时的重点领域提供了启示。通过结合 PPIE 的见解，该项目旨在发现痴呆症护理服务中的不平等现象，改善医院对痴呆症患者的护理，营造更具包容性和支持性的医疗环境。患者或公众的贡献该研究的目的是探讨痴呆症患者、其照护者和家人在医院护理方面最关心的问题。痴呆症患者、照护者和家属通过社区痴呆症咖啡馆参与到研究中，并被招募参加焦点小组，讨论痴呆症患者的医院护理问题。讨论问题和材料的设计是在咨询了大学部门的服务用户负责人和痴呆症专家后制定的，并由一名痴呆症服务用户成员进行了审核。我们还与一组护理人员进行了试点焦点小组讨论。我们与痴呆症咖啡馆经理合作，协调招募工作，并为焦点小组的开展提供合适的环境。试验注册不适用。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Health Expectations 医学-公共卫生、环境卫生与职业卫生

CiteScore

5.20

自引率

9.40%

发文量

251

审稿时长

>12 weeks

期刊介绍： Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including: • Person-centred care and quality improvement • Patients'' participation in decisions about disease prevention and management • Public perceptions of health services • Citizen involvement in health care policy making and priority-setting • Methods for monitoring and evaluating participation • Empowerment and consumerism • Patients'' role in safety and quality • Patient and public role in health services research • Co-production (researchers working with patients and the public) of research, health care and policy Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.