{"title":"Recognising the Parental Caregiver Burden of Children With Mental Disorders: A Systematic Mixed-Studies Review","authors":"Travis Lanz-Brian Pereira, Orn-Anong Wichaikhum, Apiradee Nantsupawat, Priyadharshni Rajendrana, Sara Baladram, Shefaly Shorey","doi":"10.1111/inm.13417","DOIUrl":null,"url":null,"abstract":"<div>\n \n <p>This review aims to consolidate and appraise evidence exploring the caregiver burden of parents of children with mental disorders. A mixed-studies review structure was adopted and six electronic databases (PubMed, CINAHL, PsycINFO, Embase, Scopus and ProQuest Dissertations and Theses Global) were searched from each database's inception date until September 2023. Thomas & Harden's thematic analysis framework was utilised for data analysis. Twenty-three studies were included in this review. The results-based convergent integration method identified an overarching theme titled ‘hiding behind the walls on fire, engulfed in chaos: dark and alone’, three main themes named ‘Invisible scars’: role of psychological factors on caregiver burden, navigating through social and economic influences on caregiving burden, and influence of illness-related variables and nine subthemes. This review highlighted that the parents perceived insufficient support from healthcare providers and a lack of insight regarding their children's medical condition as the primary contributors to the burden experienced. It is imperative for healthcare professionals to collaboratively engage with parental caregivers, offering accessible treatment options for their children with mental disorders and providing comprehensive educational resources to facilitate a profound understanding of their children's mental health conditions. In addition to addressing caregivers' informational needs, the establishment of an integrated support system is advocated, one involving active participation from healthcare professionals, healthcare institutions, community resources, social services and policymakers. This holistic approach could better meet the multifaceted needs of caregivers, encompassing psychosocial, emotional and financial aspects.</p>\n <p><b>Trial Registration:</b> International Prospective Register of Systematic Reviews: PROSPERO ID: CRD42022363420</p>\n </div>","PeriodicalId":14007,"journal":{"name":"International Journal of Mental Health Nursing","volume":"33 6","pages":"1941-1961"},"PeriodicalIF":3.6000,"publicationDate":"2024-09-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"International Journal of Mental Health Nursing","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/inm.13417","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"NURSING","Score":null,"Total":0}
引用次数: 0
Abstract
This review aims to consolidate and appraise evidence exploring the caregiver burden of parents of children with mental disorders. A mixed-studies review structure was adopted and six electronic databases (PubMed, CINAHL, PsycINFO, Embase, Scopus and ProQuest Dissertations and Theses Global) were searched from each database's inception date until September 2023. Thomas & Harden's thematic analysis framework was utilised for data analysis. Twenty-three studies were included in this review. The results-based convergent integration method identified an overarching theme titled ‘hiding behind the walls on fire, engulfed in chaos: dark and alone’, three main themes named ‘Invisible scars’: role of psychological factors on caregiver burden, navigating through social and economic influences on caregiving burden, and influence of illness-related variables and nine subthemes. This review highlighted that the parents perceived insufficient support from healthcare providers and a lack of insight regarding their children's medical condition as the primary contributors to the burden experienced. It is imperative for healthcare professionals to collaboratively engage with parental caregivers, offering accessible treatment options for their children with mental disorders and providing comprehensive educational resources to facilitate a profound understanding of their children's mental health conditions. In addition to addressing caregivers' informational needs, the establishment of an integrated support system is advocated, one involving active participation from healthcare professionals, healthcare institutions, community resources, social services and policymakers. This holistic approach could better meet the multifaceted needs of caregivers, encompassing psychosocial, emotional and financial aspects.
Trial Registration: International Prospective Register of Systematic Reviews: PROSPERO ID: CRD42022363420
期刊介绍：
The International Journal of Mental Health Nursing is the official journal of the Australian College of Mental Health Nurses Inc. It is a fully refereed journal that examines current trends and developments in mental health practice and research.
The International Journal of Mental Health Nursing provides a forum for the exchange of ideas on all issues of relevance to mental health nursing. The Journal informs you of developments in mental health nursing practice and research, directions in education and training, professional issues, management approaches, policy development, ethical questions, theoretical inquiry, and clinical issues.
The Journal publishes feature articles, review articles, clinical notes, research notes and book reviews. Contributions on any aspect of mental health nursing are welcomed.
Statements and opinions expressed in the journal reflect the views of the authors and are not necessarily endorsed by the Australian College of Mental Health Nurses Inc.
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