Burden in caregivers of patients with schizophrenia, depression, dementia, and stroke in Japan: comparative analysis of quality of life, work productivity, and qualitative caregiving burden.

IF 3.4 2区 医学 Q2 PSYCHIATRY
Yoshitsugu Kojima, Sakiko Yamada, Kunitoshi Kamijima, Kentaro Kogushi, Shunya Ikeda
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引用次数: 0

Abstract

Background: The main objective of this study was to examine the burden of schizophrenia, depression, Alzheimer's disease/dementia, and stroke on caregivers and non-caregivers in Japan. This study also aimed to provide a comparative landscape on the burden of caregiving for each disorder.

Methods: The Japan National Health and Wellness Survey database, 2016 and 2018 was used in this study. Health-related quality of life (HRQoL), work productivity, and health care utilization were assessed using a self-administered, Internet-based questionnaire. The burden of caregiving experienced by each group of caregivers was compared with background-matched non-caregivers (controls) as well as with caregivers of patients with each disorder.

Results: Caregivers of patients with schizophrenia, depression, Alzheimer's disease/dementia, or stroke had lower HRQoL, higher healthcare costs and work productivity impairment than non-caregivers. Furthermore, caregivers of patients with psychiatric disorders such as schizophrenia and depression had lower HRQoL and work productivity than caregivers of patients with Alzheimer's disease/dementia and stroke. In addition, according to the Caregiver Reaction Assessment (CRA), caregivers of patients with schizophrenia and depression were more inclined to perceive a loss in physical strength and financial burden to the same extent as their self-esteem.

Conclusions: This study indicated a substantial caregiving burden among caregivers of patients with psychiatric and neurological diseases in Japan. The caregiver burden of psychiatric disorders (schizophrenia and depression) was greater than that of neurological disorders (Alzheimer's disease/dementia and stroke), suggesting a need to provide support to caregivers of patients with psychiatric disorders to be better able to care for their patients.

Trial registration: None.

日本精神分裂症、抑郁症、痴呆症和中风患者护理者的负担:生活质量、工作效率和定性护理负担的比较分析。
研究背景本研究的主要目的是调查日本精神分裂症、抑郁症、阿尔茨海默病/痴呆症和中风给护理者和非护理者造成的负担。本研究还旨在对每种疾病的护理负担进行比较:本研究使用了 2016 年和 2018 年的日本国民健康与福利调查数据库。采用自填式网络问卷对健康相关生活质量(HRQoL)、工作效率和医疗保健利用率进行了评估。将每组照顾者所承受的照顾负担与背景匹配的非照顾者(对照组)以及每种疾病患者的照顾者进行了比较:结果:与非照顾者相比,精神分裂症、抑郁症、阿尔茨海默病/痴呆症或中风患者的照顾者的 HRQoL 更低、医疗成本更高、工作效率更低。此外,与阿尔茨海默病/痴呆症和中风患者的护理者相比,精神分裂症和抑郁症等精神疾病患者的护理者的 HRQoL 和工作效率更低。此外,根据护理人员反应评估(CRA),精神分裂症和抑郁症患者的护理人员更倾向于认为体力和经济负担的损失与自尊心的损失程度相同:这项研究表明,在日本,精神科和神经科疾病患者的护理者承担着巨大的护理负担。精神疾病(精神分裂症和抑郁症)的照顾者负担比神经系统疾病(阿尔茨海默病/痴呆症和中风)的照顾者负担更大,这表明有必要为精神疾病患者的照顾者提供支持,使其能够更好地照顾患者:试验登记:无。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
BMC Psychiatry
BMC Psychiatry 医学-精神病学
CiteScore
5.90
自引率
4.50%
发文量
716
审稿时长
3-6 weeks
期刊介绍: BMC Psychiatry is an open access, peer-reviewed journal that considers articles on all aspects of the prevention, diagnosis and management of psychiatric disorders, as well as related molecular genetics, pathophysiology, and epidemiology.
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