Exploring Social Support Experiences of Caregivers of Persons Living With Dementia in Hospice Care.

IF 2.2 3区医学 Q2 GERONTOLOGY

Journal of Applied Gerontology Pub Date : 2024-08-30 DOI:10.1177/07334648241275968

Hannah Cho, Justine S Sefcik, Karla Washington, Debra Parker Oliver, George Demiris

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引用次数: 0

Abstract

As the number of persons living with dementia (PLWD) enrolling in hospice care rises, caregiver support becomes increasingly crucial. While social support can help buffer caregiver stress, many caregivers report feeling isolated and having unmet needs, highlighting the limited research on this population. This qualitative descriptive study aimed to better understand caregivers' social support during the period when the PLWD is enrolled in hospice care. Analyzing qualitative data from 22 caregivers of PLWD using conventional content analysis, we identified the theme "Variations in Social Connections." This theme encompasses two subthemes: "never completely alone," indicating social support from family, friends, and neighbors, and "disappointed sometimes," reflecting instances when some individuals in the caregivers' lives couldn't provide regular support. These findings underscore the need for individualized interventions, as each caregiver experiences social support uniquely. Future research should consider the variations in social support among caregivers of PLWD to inform caregiving practices effectively.

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探索安宁疗护中痴呆症患者护理者的社会支持体验。

随着加入安宁疗护的痴呆症患者（PLWD）人数的增加，护理者的支持变得越来越重要。虽然社会支持可以帮助缓冲照护者的压力，但许多照护者表示感到孤立无援且需求得不到满足，这凸显了对这一人群的研究十分有限。这项定性描述性研究旨在更好地了解护理者在小儿麻痹症患者接受安宁疗护期间的社会支持情况。我们使用传统的内容分析法对来自 22 位 PLWD 护理者的定性数据进行了分析，确定了 "社会联系的变化 "这一主题。这一主题包含两个次主题："从未完全孤独 "表明来自家人、朋友和邻居的社会支持，"有时失望 "反映了照顾者生活中某些人无法提供定期支持的情况。这些发现强调了采取个性化干预措施的必要性，因为每个照顾者都会经历独特的社会支持。未来的研究应考虑到小儿麻痹症患者照顾者在社会支持方面的差异，以便有效地指导照顾实践。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Applied Gerontology GERONTOLOGY-

CiteScore

5.10

自引率

13.30%

发文量

202

期刊介绍： The Journal of Applied Gerontology (JAG) is the official journal of the Southern Gerontological Society. It features articles that focus on research applications intended to improve the quality of life of older persons or to enhance our understanding of age-related issues that will eventually lead to such outcomes. We construe application broadly and encourage contributions across a range of applications toward those foci, including interventions, methodology, policy, and theory. Manuscripts from all disciplines represented in gerontology are welcome. Because the circulation and intended audience of JAG is global, contributions from international authors are encouraged.