Predictors of the quality of life in siblings of children with chronic diseases.

IF 2.1 4区 医学 Q2 NURSING
Fatemeh Eidi, Mahshid Mirzaie Taklimi, Zahra Taheri-Ezbarami, Elnaz Faraji-Nesfechi, Ehsan Kazemnejad Leili
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引用次数: 0

Abstract

Purpose: Advances in medical sciences have contributed to the increase in children living with chronic diseases. The diagnosis of a chronic disease in a child can affect the quality of life of all family members, including siblings. Therefore, this study aimed to identify the predictors of quality of life among siblings aged 8 to 12 years who have a brother or sister with chronic diseases.

Methods: In this case-control study conducted in Rasht, 85 siblings of children with chronic diseases as the case group and 172 siblings of healthy children as the control group were recruited using cluster sampling. The two groups were matched for age and gender. Data were collected using the Pediatric Quality of Life Inventory (PedsQL TM) and a demographic questionnaire. The collected data were analyzed using Mann-Whitney U, Kruskal-Wallis, and logistic regression analysis tests via SPSS version 16.

Results: The mean quality of life scores in the case and control groups were 88.86 ± 10.33 and 87.39 ± 10.89, respectively, indicating a desirable level within both groups. No statistically significant difference was found in this regard between the two groups. Based on the logistic regression analysis, three variables of number of family members (P = 0.03), mother's education level (P = 0.025), and family's income level (P = 0.023) were identified as significant predictors of quality of life. In this regard, it was found that the number of family members and the mother's education level were positively related to the quality of life, increasing the mean scores by 2.32 and 1.48, respectively. Conversely, a higher family income level was associated with a decrease in quality of life scores by 0.543.

Conclusions: The study found that the quality of life among siblings of children with chronic diseases is good, comparable to that of their peers. The findings imply that the chronicity of the disease does not significantly impair siblings' adaptation and overall well-being.

Practice implications: The findings of this study can be used in various fields, including healthcare management, nursing clinical services, nursing education, and nursing research.

慢性病患儿兄弟姐妹生活质量的预测因素。
目的:医学科学的进步导致患有慢性疾病的儿童人数增加。儿童被诊断患有慢性疾病会影响包括兄弟姐妹在内的所有家庭成员的生活质量。因此,本研究旨在确定有兄弟或姐妹患有慢性疾病的 8 至 12 岁兄弟姐妹的生活质量预测因素:在拉什特进行的这项病例对照研究中,采用集群抽样的方法招募了 85 名慢性病患儿的兄弟姐妹作为病例组,172 名健康儿童的兄弟姐妹作为对照组。两组儿童的年龄和性别匹配。使用儿科生活质量量表 (PedsQL TM) 和人口统计学问卷收集数据。收集到的数据通过 SPSS 16 版本的 Mann-Whitney U、Kruskal-Wallis 和逻辑回归分析检验进行分析:病例组和对照组的平均生活质量得分分别为(88.86 ± 10.33)和(87.39 ± 10.89),表明两组的生活质量都达到了理想水平。两组在这方面没有发现明显的统计学差异。根据逻辑回归分析,家庭成员数量(P = 0.03)、母亲教育水平(P = 0.025)和家庭收入水平(P = 0.023)这三个变量被确定为生活质量的重要预测因素。在这方面,研究发现家庭成员的数量和母亲的教育水平与生活质量呈正相关,分别使平均分提高了 2.32 分和 1.48 分。相反,家庭收入水平越高,生活质量得分就会下降 0.543:研究发现,慢性病患儿兄弟姐妹的生活质量良好,与同龄人相当。研究结果表明,慢性疾病并不会严重影响兄弟姐妹的适应能力和整体幸福感:实践意义:本研究结果可用于医疗保健管理、护理临床服务、护理教育和护理研究等多个领域。
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来源期刊
CiteScore
3.70
自引率
8.30%
发文量
291
审稿时长
65 days
期刊介绍: Official Journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society (PENS) The Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) is interested in publishing evidence-based practice, quality improvement, theory, and research papers on a variety of topics from US and international authors. JPN is the official journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society. Cecily L. Betz, PhD, RN, FAAN is the Founder and Editor in Chief. Journal content covers the life span from birth to adolescence. Submissions should be pertinent to the nursing care needs of healthy and ill infants, children, and adolescents, addressing their biopsychosocial needs. JPN also features the following regular columns for which authors may submit brief papers: Hot Topics and Technology.
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