Navigating global collaboration: challenges faced by the international network on esophageal atresia.

IF 3.4 2区医学 Q2 GENETICS & HEREDITY

Orphanet Journal of Rare Diseases Pub Date : 2024-08-21 DOI:10.1186/s13023-024-03250-6

Frédéric Gottrand, Usha Krishnan, Anke Widenmann, Michaela Dellenmark Blom, Luigi Dall'Oglio, Rene Wijnen, Michiel van Wijk, JoAnne Fruithof, Daniel von Allmen, Tom Kovesi, Christophe Faure

引用次数: 0

Abstract

The International Network on Esophageal Atresia (INoEA) stands as a beacon of collaboration in addressing the complexities of this congenital condition on a global scale. The eleven board members, from various countries (USA, Canada, France, Australia, Italy, Sweden, Germany, and The Netherlands) and backgrounds (pediatric gastroenterology, pediatric surgery, pediatric pulmonology, nursing, and parents) met in a face-to-face symposium in Lille in November 2023, to identify challenges and solutions for improving global collaboration of the network.

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全球合作导航：食道闭锁国际网络面临的挑战。

国际食道闭锁网络（INoEA）是全球范围内解决食道闭锁这一复杂先天性疾病的合作灯塔。来自不同国家（美国、加拿大、法国、澳大利亚、意大利、瑞典、德国和荷兰）和不同背景（小儿肠胃病学、小儿外科、小儿肺病学、护理学和家长）的十一名理事会成员于2023年11月在里尔举行了一次面对面的研讨会，以确定改善该网络全球合作所面临的挑战和解决方案。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Orphanet Journal of Rare Diseases 医学-医学：研究与实验

CiteScore

6.30

自引率

8.10%

发文量

418

审稿时长

4-8 weeks

期刊介绍： Orphanet Journal of Rare Diseases is an open access, peer-reviewed journal that encompasses all aspects of rare diseases and orphan drugs. The journal publishes high-quality reviews on specific rare diseases. In addition, the journal may consider articles on clinical trial outcome reports, either positive or negative, and articles on public health issues in the field of rare diseases and orphan drugs. The journal does not accept case reports.

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