The top 10 priorities in adults living with type 1 diabetes in Ireland and the United Kingdom - A James Lind Alliance priority setting partnership.

IF 3.2 3区医学 Q2 ENDOCRINOLOGY & METABOLISM

Diabetic Medicine Pub Date : 2024-12-01 Epub Date: 2024-08-19 DOI:10.1111/dme.15429

Christine Newman, Suzannah Kinsella, Peter Rooney, Jake Bromley, Rachel Connor, Kate Gajewska, Sinead Hannan, Richard I G Holt, Julia Hubbard, Columb Kavangh, Jinty Moffett, Anna Morris, Hilary Nathan, Nick Oliver, John R Petrie, Michael Skarlatos, David Treanor, Pauline Williams, Fidelma P Dunne

{"title":"The top 10 priorities in adults living with type 1 diabetes in Ireland and the United Kingdom - A James Lind Alliance priority setting partnership.","authors":"Christine Newman, Suzannah Kinsella, Peter Rooney, Jake Bromley, Rachel Connor, Kate Gajewska, Sinead Hannan, Richard I G Holt, Julia Hubbard, Columb Kavangh, Jinty Moffett, Anna Morris, Hilary Nathan, Nick Oliver, John R Petrie, Michael Skarlatos, David Treanor, Pauline Williams, Fidelma P Dunne","doi":"10.1111/dme.15429","DOIUrl":null,"url":null,"abstract":"Aims: To undertake a Priority Setting Partnership (PSP), identifying the most important unanswered questions in type 1 diabetes in Ireland and the United Kingdom and to compare these to priorities identified in a 2011 PSP.Methods: A steering committee (including eight individuals with lived experience/charity representatives and six clinicians) designed a survey which asked stakeholders to list three questions about type 1 diabetes. This was disseminated through social media, direct email contact, and printed posters. Following analysis, a second survey asked participants to rank these priorities in order of importance. The top questions were then carried forward to an online, 2 days final workshop where the final top 10 were ranked.Results: There were 1050 responses (64% female, 78% adults living with type 1 diabetes, 9% healthcare professionals, 9% family members) to the first survey and 2937 individual questions were submitted. Sixty-five summary questions were submitted into a second survey, completed by 497 individuals (76% adults living with type 1 diabetes, 9% healthcare professionals, and 11% family members). Nineteen questions from the interim survey progressed to a final workshop, which identified the top 10 priorities through group discussion. As in 2011, there was emphasis on psychological health, diabetes-related complications, and hypoglycaemia. New themes prioritised included artificial intelligence and women's health.Conclusions: The research priorities, which have been identified using a robust and proven methodology, highlight the key concerns of those living with type 1 diabetes, their families and representatives, as well as clinicians in Ireland and the UK.","PeriodicalId":11251,"journal":{"name":"Diabetic Medicine","volume":null,"pages":null},"PeriodicalIF":3.2000,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Diabetic Medicine","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1111/dme.15429","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/8/19 0:00:00","PubModel":"Epub","JCR":"Q2","JCRName":"ENDOCRINOLOGY & METABOLISM","Score":null,"Total":0}

引用次数: 0

Abstract

Aims: To undertake a Priority Setting Partnership (PSP), identifying the most important unanswered questions in type 1 diabetes in Ireland and the United Kingdom and to compare these to priorities identified in a 2011 PSP.

Methods: A steering committee (including eight individuals with lived experience/charity representatives and six clinicians) designed a survey which asked stakeholders to list three questions about type 1 diabetes. This was disseminated through social media, direct email contact, and printed posters. Following analysis, a second survey asked participants to rank these priorities in order of importance. The top questions were then carried forward to an online, 2 days final workshop where the final top 10 were ranked.

Results: There were 1050 responses (64% female, 78% adults living with type 1 diabetes, 9% healthcare professionals, 9% family members) to the first survey and 2937 individual questions were submitted. Sixty-five summary questions were submitted into a second survey, completed by 497 individuals (76% adults living with type 1 diabetes, 9% healthcare professionals, and 11% family members). Nineteen questions from the interim survey progressed to a final workshop, which identified the top 10 priorities through group discussion. As in 2011, there was emphasis on psychological health, diabetes-related complications, and hypoglycaemia. New themes prioritised included artificial intelligence and women's health.

Conclusions: The research priorities, which have been identified using a robust and proven methodology, highlight the key concerns of those living with type 1 diabetes, their families and representatives, as well as clinicians in Ireland and the UK.

查看原文本刊更多论文

爱尔兰和英国 1 型糖尿病成人患者的 10 大优先事项--詹姆斯-林德联盟优先事项设定伙伴关系。

目的：开展 "确定优先事项伙伴关系"（PSP）活动，确定爱尔兰和英国 1 型糖尿病最重要的未决问题，并将这些问题与 2011 年 PSP 确定的优先事项进行比较：指导委员会（包括八名有生活经验的个人/慈善机构代表和六名临床医生）设计了一项调查，要求利益相关者列出有关 1 型糖尿病的三个问题。该调查通过社交媒体、直接电子邮件联系和印刷海报进行传播。经过分析后，第二项调查要求参与者按照重要性对这些优先事项进行排序。然后，在为期 2 天的在线研讨会上对最重要的问题进行排名，最终确定前 10 个问题：第一次调查共收到 1050 份回复（64% 为女性，78% 为 1 型糖尿病成人患者，9% 为医护人员，9% 为家庭成员），提交了 2937 个问题。第二次调查提交了 65 个汇总问题，共有 497 人（76% 为成年 1 型糖尿病患者，9% 为医护人员，11% 为家庭成员）完成了调查。中期调查中的 19 个问题进入了最后的研讨会，通过小组讨论确定了 10 大优先事项。与 2011 年一样，心理健康、糖尿病相关并发症和低血糖是重点。新的优先主题包括人工智能和女性健康：这些研究重点是采用可靠且行之有效的方法确定的，突出了爱尔兰和英国的 1 型糖尿病患者、其家人和代表以及临床医生的主要关注点。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Diabetic Medicine 医学-内分泌学与代谢

CiteScore

7.20

自引率

5.70%

发文量

229

审稿时长

3-6 weeks

期刊介绍： Diabetic Medicine, the official journal of Diabetes UK, is published monthly simultaneously, in print and online editions. The journal publishes a range of key information on all clinical aspects of diabetes mellitus, ranging from human genetic studies through clinical physiology and trials to diabetes epidemiology. We do not publish original animal or cell culture studies unless they are part of a study of clinical diabetes involving humans. Categories of publication include research articles, reviews, editorials, commentaries, and correspondence. All material is peer-reviewed. We aim to disseminate knowledge about diabetes research with the goal of improving the management of people with diabetes. The journal therefore seeks to provide a forum for the exchange of ideas between clinicians and researchers worldwide. Topics covered are of importance to all healthcare professionals working with people with diabetes, whether in primary care or specialist services. Surplus generated from the sale of Diabetic Medicine is used by Diabetes UK to know diabetes better and fight diabetes more effectively on behalf of all people affected by and at risk of diabetes as well as their families and carers.”