"I Don't Get to Play With My Mum Anymore": Experiences of Siblings Aged 8-12 of Children With Cancer: A Qualitative Study.

IF 1 4区 医学 Q3 NURSING
Jenny Davies, Moira O'Connor, Georgia K B Halkett, Lauren Kelada, Nicholas G Gottardo
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Abstract

Background: Siblings of children with cancer have been shown to experience disruption in multiple domains including family, school, and friendships. Existing literature on siblings' experiences focuses on older children or on a broad range of ages. Aim: To explore the experience of siblings aged 8-12 years when their brother or sister is diagnosed with cancer. Method: A qualitative design incorporating phenomenology as the theoretical framework was used. Participants were recruited from across Australia via notices on social media sites and by the distribution of flyers. We used thematic analysis to analyze the data. Data were collected via semistructured interviews conducted either in person or online. Findings: A total of 13 siblings (7 boys and 6 girls) aged between 8 and 12 years (M = 9.8, SD = 1.6) were interviewed. Seven main themes were identified. These were "It was really hard": Reactions to the cancer diagnosis; "I'm really angry": Emotional and Physical Responses to siblings' treatment; "I pretend teddy is real": Play as an outlet; "It was very lonely": Missing their siblings; "I missed out on a lot of fun": Disruption of activities: School, sports, playdates, and parties; Change and Transition and "Making a difficult situation worse": COVID-19 Pandemic. Discussion: Findings extend the current understanding showing that younger siblings' developmental and cognitive skills impact their experiences of childhood cancer. Younger siblings outlined the many losses they experienced which demonstrated a need for a comprehensive and tailored program to support young siblings aged under 12 of children with cancer.

"我再也不能和妈妈一起玩了":癌症儿童 8-12 岁兄弟姐妹的经历:定性研究。
背景:事实证明,癌症儿童的兄弟姐妹在家庭、学校和友谊等多个领域都会受到干扰。有关兄弟姐妹经历的现有文献主要集中在年龄较大的儿童或年龄范围较广的儿童身上。目的:探讨 8-12 岁的兄弟姐妹在其哥哥或姐姐被诊断出患有癌症时的经历。研究方法:采用定性设计,将现象学作为理论框架。我们通过在社交媒体网站上发布通知和散发传单的方式在澳大利亚各地招募参与者。我们采用主题分析法对数据进行分析。我们通过面对面或在线的半结构化访谈收集数据。研究结果我们共采访了 13 个年龄在 8 到 12 岁之间的兄弟姐妹(7 个男孩和 6 个女孩)(M = 9.8,SD = 1.6)。确定了七大主题。这些主题是 "这真的很难":对癌症诊断的反应;"我真的很生气":我假装泰迪是真的":游戏是一种发泄方式;"非常孤独":想念兄弟姐妹;"我错过了很多乐趣":活动中断:学校、运动、玩伴和聚会;变化和过渡以及 "使困难的情况变得更糟":COVID-19 大流行病。讨论情况:研究结果扩展了目前的认识,表明弟弟妹妹的发育和认知能力会影响他们对儿童癌症的体验。年幼的兄弟姐妹概述了他们所经历的许多损失,这表明有必要为 12 岁以下癌症儿童的年幼兄弟姐妹提供全面的定制计划支持。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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CiteScore
3.30
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