International Society of Paediatric Oncology (SIOP) Global Mapping Program: Analysis of healthcare centers in countries of the Latin American Society of Pediatric Oncology (SLAOP)
Maite Gorostegui-Obanos, Luisa Chantada, Nevicolino Pereira Carvalho Filho, Oscar Gonzalez-Ramella, María J. Serrano B, Diana Valencia, Claudia Sampor, Carla Macedo, Oscar Ramirez, Susan Sardinas, Eva Lezcano, Patricia Calderón, Yessika Gamboa, Ligia Fu, Wendy Gómez, Magdalena Schelotto, Cecilia Ugaz, Pablo Lobos, Katiuska Moreno, Julia Palma, Gisella Sánchez, Filomena Moschella, Pascale Yola Heurtelou Gassant, Thelma Velasquez, Karina Quintero, Mariuska Forteza, Milena Villarroel, Florencia Moreno, Soad Fuentes Alabi, Liliana Vasquez, Jennifer Lowe, Andrea Cappellano, Julia Challinor, Guillermo L. Chantada
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Abstract
Background
The International Society of Paediatric Oncology Society Global Mapping Program aims to describe the local pediatric oncology capacities. Here, we report the data from Latin America.
Methods
A 10-question survey was distributed among chairs of pediatric oncology services. Centers were classified according to patient volume into high- (HVC; 100 or more new cases per year), medium- (MVC; 31–99 cases), and low-volume centers (LVC; 30 cases or less), respectively. National referral centers (NRC) were identified.
Results
Total 307 centers in 20 countries were identified (271 responded), and 264 responses were evaluable, accounting for 78% of the expected cases (21,359 cases per year). Seventy-seven percent of patients are treated in public centers, including additional support by civil society organizations. We found that 66% of the patients are treated in 70 centers of excellence, including 21 NRC. There was a median of one pediatric oncologist every 21 newly diagnosed patients (44 for NRC), and in 84% of the centers, nurses rotated to other services. A palliative care team was lacking in 25% of the centers. LVC with public funding have significantly lower probability of having a palliative care team or trained pediatric oncology surgeons. Psychosocial, pharmacy, and nutrition services were available in more than 93% of the centers. No radiotherapy facility was available on campus in nine of 21 NRC.
Conclusions
Most children with cancer in Latin America are treated in public HVC. There is a scarcity of pediatric oncologists, specialized nurses and surgeons, and palliative care teams, especially in centers with public funding.
期刊介绍:
Pediatric Blood & Cancer publishes the highest quality manuscripts describing basic and clinical investigations of blood disorders and malignant diseases of childhood including diagnosis, treatment, epidemiology, etiology, biology, and molecular and clinical genetics of these diseases as they affect children, adolescents, and young adults. Pediatric Blood & Cancer will also include studies on such treatment options as hematopoietic stem cell transplantation, immunology, and gene therapy.