“Warrior who transcends adversity”: A qualitative examination of resilience among mothers caring for adolescents with congenital heart disease

Abstract

Purpose

Parenting resilience is essential for the well-being and development of children with chronic illnesses. Given the importance of parenting resilience in this context, this study explored the nature of parenting resilience among mothers caring for adolescents with congenital heart disease (CHD).

Design and methods

We adopted Husserl's phenomenological approach and conducted semistructured in-depth interviews. In addition, we conducted purposive sampling at the pediatric cardiology outpatient departments of 2 medical centers in Taiwan to recruit 11 mothers of adolescents with CHD; all of these adolescents had received open-heart surgery. Furthermore, we analyzed data by using Colaizzi's approach, and we adhered to the COnsolidated criteria for REporting Qualitative research checklist.

Results

Mothers caring for adolescents with CHD was a dynamic process involving problem solving. The 11 mothers in this study employed resilience to remain strong, provided a sense of normalcy for their children, and approached challenges calmly and bravely. We uncovered three major themes among these mothers: “providing support for the child, “facing challenges with equanimity,” and “overcoming adversity through positivity and gratitude.”

Conclusions

The present results provide a deeper understanding of how mothers caring for adolescents with CHD can cultivate resilience.

Practice implications

The study's findings can inform transitional programs for adolescents with CHD and their families, with nursing professionals supporting mothers' resilience.