Factors linked with perceived stigma amid people with Epilepsy -across sectional study

IF 2 4区医学 Q3 CLINICAL NEUROLOGY

Epilepsy Research Pub Date : 2024-08-06 DOI:10.1016/j.eplepsyres.2024.107428

Archana Verma , Pooja Pathak , Ashutosh Kumar Mishra , Sachin Upadhya

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引用次数: 0

Abstract

Objectives

People with epilepsy (PWE) continue to suffer from discrimination and often bear the negative attitudes surrounding this condition. The aim of the study was to assess the frequency of perceived stigma and factors associated with it among PWE in tertiary care centre.

Material and methods

A hospital-based, cross-sectional study was conducted using the Kilifi Stigma Scale of Epilepsy (KSSE) to assess the stigma associated with epilepsy and factors related to stigma.

Results

A total of 260 consecutive PWE were recruited, with a mean age of 28.12±9.96 years. The majority of subjects had primarily or secondarily generalized seizures (85 %), and most of PWE don’t know the cause of epilepsy (79.2 %) and feel that epilepsy is a contagious disease. Those with contagious beliefs felt more stigma (27.7 %). Stigma was perceived by 28.5 % of subjects using KSSE. Stigma was more perceived in those who had primarily or secondarily generalized seizures (23.9 %) and longer durations of anti-seizure medication (ASM) (24.4 %). Injury during a seizure was reported in 30 % of subjects and were more stigmatized (p<.01).

Conclusion

Perceived stigma in PWE was found to be correlated with contagious beliefs. There is a need for awareness and educational programs by healthcare professionals at different levels to support and encourage positive beliefs, dispel myths about epilepsy, and inform PWEs of the fact that it is not a contagious disease.

查看原文本刊更多论文

与癫痫患者感到耻辱有关的因素--跨部门研究。

目标：癫痫患者（PWE）继续遭受歧视，并经常承受围绕这一病症的负面态度。本研究旨在评估三级医疗中心的癫痫患者感知到的成见的频率及其相关因素：采用基利菲癫痫耻辱感量表（KSSE）进行了一项基于医院的横断面研究，以评估与癫痫相关的耻辱感以及与耻辱感相关的因素：研究共招募了 260 名连续的病患，平均年龄为（28.12±9.96）岁。大多数受试者主要或次要有全身性癫痫发作（85%），大多数残疾人不知道癫痫的病因（79.2%），并认为癫痫是一种传染病。认为癫痫会传染的人感到更多的耻辱（27.7%）。使用 KSSE 的受试者中有 28.5% 的人感到耻辱。那些主要或次要全身性癫痫发作（23.9%）和服用抗癫痫药物（ASM）时间较长（24.4%）的受试者更容易感到耻辱。据报告，30%的受试者在癫痫发作时受伤，他们更容易受到鄙视（p 结论：研究发现，残疾人的耻辱感与他们的传染观念有关。各级医疗保健专业人员有必要开展宣传和教育计划，以支持和鼓励积极的信念，消除对癫痫的误解，并让残疾人了解癫痫不是一种传染病。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Epilepsy Research 医学-临床神经学

CiteScore

0.10

自引率

4.50%

发文量

143

审稿时长

62 days

期刊介绍： Epilepsy Research provides for publication of high quality articles in both basic and clinical epilepsy research, with a special emphasis on translational research that ultimately relates to epilepsy as a human condition. The journal is intended to provide a forum for reporting the best and most rigorous epilepsy research from all disciplines ranging from biophysics and molecular biology to epidemiological and psychosocial research. As such the journal will publish original papers relevant to epilepsy from any scientific discipline and also studies of a multidisciplinary nature. Clinical and experimental research papers adopting fresh conceptual approaches to the study of epilepsy and its treatment are encouraged. The overriding criteria for publication are novelty, significant clinical or experimental relevance, and interest to a multidisciplinary audience in the broad arena of epilepsy. Review articles focused on any topic of epilepsy research will also be considered, but only if they present an exceptionally clear synthesis of current knowledge and future directions of a research area, based on a critical assessment of the available data or on hypotheses that are likely to stimulate more critical thinking and further advances in an area of epilepsy research.