Feasibility of caregiver diabetes distress screening in routine clinical care of youth with type 1 diabetes

IF 3.2 3区 医学 Q2 ENDOCRINOLOGY & METABOLISM
Einas H. Alkhatib, Lauren Clary, Angelica Eddington, Randi Streisand, Shideh Majidi
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引用次数: 0

Abstract

Aims

Caregiver diabetes distress (DD) consists of feeling overwhelmed, sad, and/or concerned; one-third of parents of youth with type 1 diabetes (T1D) report severe distress up to 4 years after T1D diagnosis. PAID-PR (Problem Areas in Diabetes Survey—Parent Revised) assesses DD primarily in research settings; however, less is known about its clinical utility. We aimed to identify the feasibility of implementing PAID-PR screening at a diverse, academic US paediatric diabetes center during routine clinic follow-up visits through quality improvement methodologies.

Methods

The PAID-PR was intended to be offered in English to caregivers at all paediatric T1D appointments, by the front desk during appointment check-in, or through REDCap prior to telehealth appointments or at local sites to all eligible caregivers. Adult psychosocial resources were provided to all, regardless of score. Forms were scored after appointments; scores ≥80 were referred to Diabetes Psychology providers for follow-up.

Results

A total of 391 caregivers completed the PAID-PR, though only half of eligible caregivers received it in person. Response rates were highest in person (90%), compared to REDCap (25%). In total, 27% (n = 107) scored ≥56 (DD). Of those with DD, 21% (n = 23) scored ≥80 and were referred to psychology. Demographics are reported in Table 1. PAID-PR score was positively correlated to A1c (p = 0.038) and inversely to child age (p = 0.014).

Conclusion

Clinic caregiver DD screening was implemented with higher response rates in person; however, expanding in-person screening to all eligible caregivers is necessary. Furthermore, since the PAID-PR was in English, some caregivers with DD were likely missed. Future directions include screening in additional languages.

在 1 型糖尿病青少年患者的常规临床护理中进行护理人员糖尿病困扰筛查的可行性。
目的:照顾者的糖尿病困扰(DD)包括感到不知所措、悲伤和/或担忧;三分之一的 1 型糖尿病(T1D)青少年患者的父母在确诊 T1D 长达 4 年后报告了严重的困扰。PAID-PR(糖尿病问题领域调查--家长修订版)主要是在研究环境中对 DD 进行评估,但对其临床实用性了解较少。我们旨在通过质量改进方法,确定在美国一家多元化的学术性儿科糖尿病中心的常规门诊随访中实施 PAID-PR 筛查的可行性:PAID-PR 计划在所有儿科 T1D 预约时以英语提供给护理人员,由前台在预约签到时提供,或在远程医疗预约前通过 REDCap 或在当地站点提供给所有符合条件的护理人员。无论得分高低,均向所有人提供成人社会心理资源。预约后对表格进行评分;得分≥80 分的护理人员将被转介给糖尿病心理服务提供者进行后续治疗:共有 391 名护理人员填写了 PAID-PR,但只有一半符合条件的护理人员亲自填写。与 REDCap(25%)相比,亲自填写的回复率最高(90%)。总计有 27% (n = 107)的人得分≥56(DD)。在 DD 患者中,21%(n = 23)的评分≥80 分,并被转介至心理科。人口统计学数据见表 1。PAID-PR 评分与 A1c 成正相关(p = 0.038),与儿童年龄成反相关(p = 0.014):结论:门诊护理人员 DD 筛查的亲自筛查响应率较高;但是,有必要将亲自筛查扩大到所有符合条件的护理人员。此外,由于 PAID-PR 使用的是英语,因此可能会遗漏一些患有 DD 的照顾者。未来的发展方向包括使用其他语言进行筛查。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Diabetic Medicine
Diabetic Medicine 医学-内分泌学与代谢
CiteScore
7.20
自引率
5.70%
发文量
229
审稿时长
3-6 weeks
期刊介绍: Diabetic Medicine, the official journal of Diabetes UK, is published monthly simultaneously, in print and online editions. The journal publishes a range of key information on all clinical aspects of diabetes mellitus, ranging from human genetic studies through clinical physiology and trials to diabetes epidemiology. We do not publish original animal or cell culture studies unless they are part of a study of clinical diabetes involving humans. Categories of publication include research articles, reviews, editorials, commentaries, and correspondence. All material is peer-reviewed. We aim to disseminate knowledge about diabetes research with the goal of improving the management of people with diabetes. The journal therefore seeks to provide a forum for the exchange of ideas between clinicians and researchers worldwide. Topics covered are of importance to all healthcare professionals working with people with diabetes, whether in primary care or specialist services. Surplus generated from the sale of Diabetic Medicine is used by Diabetes UK to know diabetes better and fight diabetes more effectively on behalf of all people affected by and at risk of diabetes as well as their families and carers.”
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