Self-perceived quality of life by institutionalised adults with cerebral palsy in Spain

IF 1.5 4区医学 Q3 HEALTH CARE SCIENCES & SERVICES

Gaceta Sanitaria Pub Date : 2024-01-01 DOI:10.1016/j.gaceta.2024.102416

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Abstract

Objective

To assess the self-perceived quality of life of institutionalized adults with cerebral palsy and to identify factors that influence their well-being, including sociodemographic, clinical, and diagnostic characteristics, as well as the degree of institutionalization.

Method

A descriptive cross-sectional study was conducted using the San Martin Quality of Life Scale among adults with cerebral palsy. Data were collected in 2021 and 2022 in a sample of adults with cerebral palsy in Navarra, Spain. Multivariate regression was used to explore the relationship between quality of life and various influential factors.

Results

The self-determination dimension positively influenced quality of life scores, whereas the social inclusion dimension had the opposite effect. Descriptive and regression analyses revealed that factors such as residing outside the city and a high degree of dependency had a negative influence on quality of life, while the degree of institutionalization had a positive impact.

Conclusions

It is important to highlight the positive effects of the degree of institutionalization on rehabilitation and well-being, as it seeks to enhance autonomy and social integration when talking about patient-centered models of institutionalization.

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西班牙养老院成年脑瘫患者的自我感觉生活质量。

目的评估机构收容的成年脑瘫患者的自我感觉生活质量，并确定影响其幸福感的因素，包括社会人口学、临床和诊断特征以及机构收容的程度：采用圣马丁生活质量量表对成年脑瘫患者进行描述性横断面研究。数据收集于 2021 年和 2022 年，样本为西班牙纳瓦拉地区的成年脑瘫患者。采用多元回归法探讨了生活质量与各种影响因素之间的关系：结果：自我决定维度对生活质量得分有积极影响，而社会包容维度的影响则相反。描述性分析和回归分析表明，居住在城市外和高度依赖性等因素对生活质量有负面影响，而机构化程度则有正面影响：在讨论以患者为中心的机构化模式时，必须强调机构化程度对康复和福祉的积极影响，因为它旨在增强自主性和社会融合。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Gaceta Sanitaria 医学-公共卫生、环境卫生与职业卫生

CiteScore

4.10

自引率

5.30%

发文量

审稿时长

29 days

期刊介绍： Gaceta Sanitaria (Health Gazette) is an international journal that accepts articles in Spanish and in English. It is the official scientific journal of the Sociedad Española de Salud Publica y Administración Sanitaria (Spanish Society of Public Health and Health Administration) (SESPAS). The Journal publishes 6 issues per year on different areas of Public Health and Health Administration, including: -Applied epidemiology- Health prevention and promotion- Environmental health- International health- Management and assessment of policies and services- Health technology assessments- Health economics. The editorial process is regulated by a peer review system. It publishes original works, reviews, opinion articles, field and methodology notes, protocols, letters to the editor, editorials, and debates.

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