Perspectives of Transition-Aged Youth with Intellectual and/or Developmental Disabilities about Self-Advocacy and Civic Engagement

IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL
Megan Best, Meghan Burke, Zach Rossetti, Sarah Demissie, Oscar Hughes, Manual Ramirez, Tim Kunzier
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Abstract

In alignment with the rallying cry of the self-advocacy movement, it is critical to center the perspectives of people with disabilities about their lived experiences. Yet, little is known about how youth with intellectual and/or developmental disabilities (IDD) engage in self-advocacy and civic engagement in special education. We conducted focus groups with 15 transition-aged youth with IDD across four states about self-advocacy and civic engagement. Youth with IDD reported engaging in self-advocacy at school, but outside of their individualized education program meetings. Parent advocacy and positive partnerships with educators promoted youth self-advocacy. Youth reported minimal involvement in civic engagement, but they had suggestions for systemic changes to special education. Implications for research and practice are discussed.

Abstract Image

智力和/或发育障碍的过渡年龄青少年对自我倡导和公民参与的看法
与自我主张运动的号召相一致,以残疾人的视角来看待他们的生活经历至关重要。然而,人们对智力和/或发育障碍(IDD)青少年如何在特殊教育中进行自我倡导和公民参与知之甚少。我们与四个州的 15 名处于过渡期的 IDD 青少年就自我倡导和公民参与问题进行了焦点小组讨论。据报告,患有 IDD 的青少年在学校参与了自我辩护,但不在其个性化教育计划会议范围内。家长的宣传以及与教育工作者的积极合作促进了青少年的自我主张。据报告,青少年很少参与公民活动,但他们对特殊教育的系统性改革提出了建议。本文讨论了研究和实践的意义。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
3.40
自引率
5.60%
发文量
54
期刊介绍: The Journal of Developmental and Physical Disabilities is an interdisciplinary forum for the publication of original research and clinical reports from a variety of fields serving persons with developmental and physical disabilities. Submissions from researchers, clinicians, and related professionals in the fields of psychology, rehabilitation, special education, kinesiology, counseling, social work, psychiatry, nursing, and rehabilitation medicine are considered. Investigations utilizing group comparisons as well as single-case experimental designs are of primary interest. In addition, case studies that are of particular clinical relevance or that describe innovative evaluation and intervention techniques are welcome. All research and clinical reports should contain sufficient procedural detail so that readers can clearly understand what was done, how it was done, and why the strategy was selected. Rigorously conducted replication studies utilizing group and single-case designs are welcome irrespective of results obtained. In addition, systematic reviews, meta-analyses, and theoretical discussions that contribute substantially to understanding the problems and strengths of persons with developmental and physical disabilities are considered for publication. Authors are encouraged to preregister empirical studies, replications, systematic reviews, and meta-analyses in a relevant public database and to include such information with their submission to the journal. Authors are also encouraged, where possible and applicable, to deposit data that support the findings of their research in a public repository (see detailed “Research Data Policy” module in the journal’s Instructions for Authors). In response to the need for increased clinical and research endeavors with persons with developmental and physical disabilities, the journal is cross-categorical and unbiased methodologically.
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