Development of a Patient and Clinician Informed Website on Injection Drug Use Related Infective Endocarditis.

Carolyn A Chan, Rebecca Minahan-Rowley, Emma T Biegacki, Kimberly L Sue, Melissa B Weimer
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Abstract

Background: Few patient-facing educational materials and interventions exist for the prevention of injection drug use-related infective endocarditis (IDU-IE). We developed a patient and clinician-informed website for patients about IDU-IE to promote education and prevention strategies.

Methods: This mixed-methods study integrated surveys and semi-structured interviews with patients and clinician to develop a patient website about IDU-IE. Patient participants included hospitalized adults with an opioid use disorder, history of injection drug use, and an injection drug use-related infection. Interprofessional healthcare clinicians including trainees participated. A baseline survey and semi-structured interviews were conducted with patients to understand knowledge of IDU-IE and preferences in educational materials content and format. Interviews were analyzed using rapid qualitative analysis. Results informed development of the patient website. Finally, patients and clinicians provided 2 rounds of survey feedback after reviewing the website, assessing the likelihood of using and recommending it to others, helpfulness of information in the website sections, and content satisfaction.

Results: Patient participants (n = 15) reported low baseline understanding of injection practice and risk of IDU-IE. After reviewing the website (n = 17), patients reported they were very likely to recommend the website as a reference for themselves (mean of 4.3; 4 = very likely) and for others (mean = 4.3). They found the following sections, on average, to be very helpful (4 = very helpful): complications from injection drug use (4.4), safer injection practice (4.4), and information about infective endocarditis (4.4). Patients on average were satisfied with the website content overall (4.8). Clinicians (n = 27) reported, on average, being very likely to recommend this website to a patient (4.4) and to use the website to counsel patients (4.1).

Conclusions: A patient and clinician-informed website on IDU-IE is acceptable for patients and clinicians to use as a patient education resource to help prevent IDU-IE-related harms.

开发关于注射吸毒相关感染性心内膜炎的患者和临床医生知情网站。
背景:在预防注射吸毒相关感染性心内膜炎(IDU-IE)方面,面向患者的教育材料和干预措施寥寥无几。我们开发了一个面向患者和临床医生的有关 IDU-IE 的网站,以促进教育和预防策略:这项混合方法研究综合了对患者和临床医生的调查和半结构化访谈,以开发一个有关 IDU-IE 的患者网站。患者包括患有阿片类药物使用障碍、注射吸毒史和注射吸毒相关感染的住院成人。包括受训人员在内的跨专业医疗临床医生也参与其中。我们对患者进行了基线调查和半结构式访谈,以了解他们对注射吸毒相关感染的认识以及对教育材料内容和形式的偏好。访谈采用快速定性分析法进行分析。调查结果为患者网站的开发提供了参考。最后,患者和临床医生在浏览网站后提供了两轮调查反馈,评估使用和向他人推荐网站的可能性、网站各部分信息的有用性以及内容的满意度:患者参与者(15 人)对注射实践和 IDU-IE 风险的基本了解较少。在浏览了网站(n = 17)后,患者表示他们很有可能推荐该网站作为自己(平均值为 4.3;4 = 很有可能)和他人(平均值 = 4.3)的参考资料。他们平均认为以下部分非常有用(4 = 非常有用):注射吸毒的并发症(4.4)、更安全的注射方法(4.4)和有关感染性心内膜炎的信息(4.4)。患者对网站内容的总体满意度平均为 4.8。临床医生(n = 27)平均表示非常有可能向患者推荐该网站(4.4),并使用该网站为患者提供咨询(4.1):结论:患者和临床医生均可接受由患者和临床医生提供信息的 IDU-IE 网站,将其作为患者教育资源,帮助预防 IDU-IE 相关危害。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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