Wellbeing of parents raising the children with autism spectrum disorder and the role of psychologists

IF 3 4区医学 Q1 MEDICINE, GENERAL & INTERNAL

Archives of Medical Science Pub Date : 2024-07-28 DOI:10.5114/aoms/190772

N. Akhtayeva, Lyazzat Kosherbayeva, A. Imamatdinova, K. Šmigelskas

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Abstract

Recent research show the rise of the prevalence of the autism spectrum disorder (ASD) worldwide. At the same time, care for ASD children was found to affect the psychological health of parents or guardians of ASD children. The aim was to identify the wellbeing of parents raising the ASD children and to explore the experiences of primary care (PHC) psychologists in providing support to them.We conducted a cross-sectional study. Parents of ASD children took part in the survey. Wellbeing was assessed using Parental Well-Being Scale including physical and emotional health, stress, social support, and quality of life. Ten primary care psychologists were also interviewed.327 parents of ASD children participated in our study. Mean wellbeing score for all parents was 52.6±15.65 pts. The highest aspect of wellbeing was enjoyment in looking after child (mean 7.29 pts) and quality of life (mean 6.87 pts). The strongest predictor of parental wellbeing was presence of disability diagnosis for ASD child related (6.33 pts), lower parental wellbeing (Beta=0.20, p<0.001). The interview results show the insufficient competence of psychologists to work with parents of children with ASD.On the parental well-being scale, the highest scores are observed for enjoyment in looking after child and quality of life. Insufficient work is carried out by PHC psychologists with parents of children with ASD. There is a need for future training of psychologists in the management of children with ASD and their parents

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抚养自闭症谱系障碍儿童的父母的福祉和心理学家的作用

最近的研究表明，自闭症谱系障碍（ASD）的发病率在全球呈上升趋势。与此同时，对自闭症谱系障碍儿童的护理也影响着自闭症谱系障碍儿童父母或监护人的心理健康。我们开展了一项横断面研究，旨在确定抚养自闭症儿童的父母的健康状况，并探讨初级保健（PHC）心理学家为他们提供支持的经验。我们进行了一项横断面研究，有 ASD 儿童的家长参加了调查。我们进行了一项横断面研究，ASD 儿童的家长参与了调查，并使用家长幸福量表（Parental Well-Being Scale）对他们的身心健康、压力、社会支持和生活质量进行了评估。327 名 ASD 儿童的家长参与了我们的研究。所有家长的平均幸福指数为（52.6±15.65）分。幸福感最高的方面是照顾孩子的乐趣（平均 7.29 分）和生活质量（平均 6.87 分）。父母幸福感的最强预测因子是与 ASD 儿童相关的残疾诊断（6.33 分），父母幸福感较低（Beta=0.20，P<0.001）。访谈结果表明，心理学家与 ASD 儿童家长合作的能力不足。在家长幸福感量表中，照顾孩子的乐趣和生活质量得分最高。初级保健中心的心理学家为患有 ASD 儿童的家长开展的工作不足。今后有必要对心理学家进行有关管理 ASD 儿童及其家长的培训。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Archives of Medical Science 医学-医学：内科

CiteScore

4.90

自引率

7.90%

发文量

139

审稿时长

1.7 months

期刊介绍： Archives of Medical Science (AMS) publishes high quality original articles and reviews of recognized scientists that deal with all scientific medicine. AMS opens the possibilities for young, capable scientists. The journal would like to give them a chance to have a publication following matter-of-fact, professional review by outstanding, famous medical scientists. Thanks to that they will have an opportunity to present their study results and/or receive useful advice about the mistakes they have made so far. The second equally important aim is a presentation of review manuscripts of recognized scientists about the educational capacity, in order that young scientists, often at the beginning of their scientific carrier, could constantly deepen their medical knowledge and be up-to-date with current guidelines and trends in world-wide medicine. The fact that our educational articles are written by world-famous scientists determines their innovation and the highest quality.