What makes life better or worse: Quality of life according to people with intellectual disabilities

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-07-28 DOI:10.1111/jar.13280

Holli M. Holmes, W. Ben Mortenson

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Abstract

Background

People with intellectual disabilities are rarely involved in research on quality of life. The study sought to answer the question: what do people with intellectual disabilities believe improves or hinders their quality of life?

Method

Using an inclusive, accessible research design, 18 participants met in small groups to answer the study's question using their choice of arts-based media. Participants completed the analysis collaboratively, identifying key themes among their responses.

Results

The participants concluded that supports, well-being, hobbies, and activities contribute to quality of life. Lack of accessibility, assumptions, negative behaviours, stress, and negative people (staff, roommates, people in general) were identified as detractors of quality of life.

Conclusions

To continue to make progress in improving the quality of life of individuals with intellectual disabilities, the voice of those with intellectual disabilities is key. The results suggest key areas of focus to make these improvements.

Abstract Image

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是什么让生活变得更好或更糟糕？智障人士的生活质量。

背景：智障人士很少参与有关生活质量的研究。本研究试图回答这样一个问题：智障人士认为什么能提高或阻碍他们的生活质量？采用包容性、无障碍的研究设计，18 名参与者以小组为单位，使用他们选择的艺术媒体回答研究问题。参与者共同完成了分析，从他们的回答中找出了关键主题：结果：参与者认为，支持、幸福、爱好和活动有助于提高生活质量。缺乏无障碍环境、假设、消极行为、压力和消极人群（员工、室友、普通人）被认为是影响生活质量的因素：要在提高智障人士生活质量方面继续取得进展，智障人士的声音是关键。研究结果表明，改善生活质量需要重点关注的领域。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.