A family affair: Repeated interviews with people with dementia and a euthanasia wish and their families.

IF 2.1 4区 医学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY
Trijntje M Scheeres-Feitsma, Petruschka Schaafsma, Jenny T van der Steen
{"title":"A family affair: Repeated interviews with people with dementia and a euthanasia wish and their families.","authors":"Trijntje M Scheeres-Feitsma, Petruschka Schaafsma, Jenny T van der Steen","doi":"10.1080/07481187.2024.2376819","DOIUrl":null,"url":null,"abstract":"<p><p>This study examines the reasons of people with dementia request euthanasia and how these reasons change over time with a special focus on reasons related to family. In addition, it examines how family relates to their loved one's euthanasia wish. Seven people with dementia and a euthanasia wish in the Netherlands were interviewed, and three years later, two of them and five family members were interviewed again. Four themes were identified using thematic analyses: (1) Protecting the relationship from the impact of dementia; (2) Private domain as the primary setting to discuss euthanasia; (3) Implicit expectation to respect and agree with the euthanasia wish; (4) Experienced responsibilities of family regarding the euthanasia wish. Professionals should be aware of the position of family and the interrelatedness of the person's concern for family happiness and families' moral commitment to agree and support the wish.</p>","PeriodicalId":11041,"journal":{"name":"Death Studies","volume":null,"pages":null},"PeriodicalIF":2.1000,"publicationDate":"2024-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Death Studies","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/07481187.2024.2376819","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PSYCHOLOGY, MULTIDISCIPLINARY","Score":null,"Total":0}
引用次数: 0

Abstract

This study examines the reasons of people with dementia request euthanasia and how these reasons change over time with a special focus on reasons related to family. In addition, it examines how family relates to their loved one's euthanasia wish. Seven people with dementia and a euthanasia wish in the Netherlands were interviewed, and three years later, two of them and five family members were interviewed again. Four themes were identified using thematic analyses: (1) Protecting the relationship from the impact of dementia; (2) Private domain as the primary setting to discuss euthanasia; (3) Implicit expectation to respect and agree with the euthanasia wish; (4) Experienced responsibilities of family regarding the euthanasia wish. Professionals should be aware of the position of family and the interrelatedness of the person's concern for family happiness and families' moral commitment to agree and support the wish.

家庭事务:对痴呆症患者和希望安乐死者及其家人的反复访谈。
本研究探讨了痴呆症患者要求安乐死的原因,以及这些原因是如何随着时间的推移而变化的,并特别关注与家人有关的原因。此外,本研究还探讨了家人与其亲人的安乐死愿望之间的关系。本研究访问了荷兰七名有安乐死愿望的痴呆症患者,并在三年后再次访问了其中两名患者和五名家属。通过主题分析确定了四个主题:(1)保护双方关系不受痴呆症的影响;(2)私人领域是讨论安乐死的主要场合;(3)尊重和同意安乐死愿望的隐含期望;(4)家人在安乐死愿望方面的经验责任。专业人员应了解家属的立场,以及当事人对家庭幸福的关注与家属同意和支持该愿望的道德承诺之间的相互关系。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
Death Studies
Death Studies Multiple-
CiteScore
8.30
自引率
7.90%
发文量
94
期刊介绍: Now published ten times each year, this acclaimed journal provides refereed papers on significant research, scholarship, and practical approaches in the fast growing areas of bereavement and loss, grief therapy, death attitudes, suicide, and death education. It provides an international interdisciplinary forum in which a variety of professionals share results of research and practice, with the aim of better understanding the human encounter with death and assisting those who work with the dying and their families.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信