"I Felt Like I Mattered": Caring is a key ingredient of collaborative care for chronic illness.

IF 1.8 4区医学 Q3 HEALTH CARE SCIENCES & SERVICES

Chronic Illness Pub Date : 2024-09-01 Epub Date: 2024-07-23 DOI:10.1177/17423953241264862

Bridget A Graney, Jennifer Dickman Portz, David B Bekelman

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引用次数: 0

Abstract

Objectives: To identify perceptions and experiences related to caring science and collaborative care in intervention participants of the Collaborative Care to Alleviate Symptoms and Adjust to Illness (CASA) study, a randomized, multi-site clinical trial for patients with chronic heart failure and reduced health status.

Methods: Forty-five participants completed semi-structured, telephone interviews with a focus on intervention components, impact of the intervention on participants' lives, and recommendations for intervention change. Data were analyzed using an inductive content analysis approach focusing on the presence and frequency of text to identify patterns, categories, and themes across participants without an a priori code book. The validity of the identified categories was enhanced through triangulation.

Results: Three themes were identified: (1) intervention providers' caring/helping attitude and caring/helping communication; (2) care team availability to respond to concerns or questions; and (3) help with understanding and navigating the healthcare system.

Discussion: Patients highly value caring attitudes and communication, availability, and empowerment to understand and navigate healthcare systems. These attitudes and behaviors may be important mediators of the success of collaborative care programs. These are consistent with the theory of caring science, a framework that is relevant more broadly to patient-centered and team-based care models.

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"我感觉我很重要"：关爱是慢性病合作护理的关键要素。

研究目的该研究是一项针对慢性心力衰竭和健康状况下降患者的多地点随机临床试验：45 名参与者完成了半结构化电话访谈，访谈重点是干预措施的组成部分、干预措施对参与者生活的影响以及对干预措施改变的建议。采用归纳式内容分析法对数据进行分析，重点关注文本的存在和出现频率，以确定不同参与者的模式、类别和主题，而无需先验的代码簿。通过三角测量提高了所确定类别的有效性：结果：确定了三个主题：结果：确定了三个主题：(1) 干预服务提供者的关怀/帮助态度和关怀/帮助沟通；(2) 护理团队对患者的担忧或问题做出回应的可用性；(3) 帮助理解和驾驭医疗系统：讨论：患者非常重视关怀态度和沟通、可用性以及理解和驾驭医疗系统的能力。这些态度和行为可能是协同护理计划取得成功的重要媒介。这与关爱科学理论是一致的，该理论框架与以患者为中心和团队为基础的护理模式具有更广泛的相关性。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Chronic Illness Multiple-

CiteScore

3.80

自引率

0.00%

发文量

期刊介绍： Chronic illnesses are prolonged, do not resolve spontaneously, and are rarely completely cured. The most common are cardiovascular diseases (hypertension, coronary artery disease, stroke and heart failure), the arthritides, asthma and chronic obstructive pulmonary disease, diabetes and epilepsy. There is increasing evidence that mental illnesses such as depression are best understood as chronic health problems. HIV/AIDS has become a chronic condition in those countries where effective medication is available.