Experiences of vaginal lengthening treatment and sexual well-being in women with Mayer–Rokitansky–Küster–Hauser (MRKH) syndrome: An interview study

IF 5.4 3区 材料科学 Q2 CHEMISTRY, PHYSICAL
Amalie Hahn Jensen, Morten Krogh Herlin, Birgitta Trolle, Ida Vogel, Stina Lou
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引用次数: 0

Abstract

Objective

To explore how women with Mayer–Rokitansky–Küster–Hauser (MRKH) syndrome experience dilation or surgical vaginal lengthening treatment, and their current sexual well-being.

Design

A qualitative interview study.

Setting

Denmark.

Population

Women aged ≥25 years diagnosed with MRKH syndrome.

Methods

Semi-structured video interviews were conducted with 18 women. Interviews lasted a median of 92 min and were digitally recorded, transcribed and anonymised. Data were analysed using thematic analysis.

Main Outcome Measures

A qualitative analysis of women's experiences.

Results

The analysis identified three themes. Firstly, Experiences with dilation treatment revealed dilation as an awkward routine, especially for adolescents living with parents and yet to sexually debut. While some experienced successful vaginal lengthening, others faced treatment failure leading to frustration and self-blame. Secondly, Experiences with neovaginal surgery described the procedure as extremely painful but resulting in a ‘normal size’ vagina. Some women felt that the procedure had negatively impacted their self-confidence, and all underscored the importance of maturity before opting for surgery. Lastly, Current sex life and sexual well-being indicated a well-functioning sex life for many women, but with reported low sexual confidence and genital self-image due to the perceived ‘deviance’ of their genitalia.

Conclusions

For women with MRKH syndrome, vaginal lengthening treatment, whether through dilation or surgery, may result in a ‘normal size’ vagina. However, according to the women's experiences, vaginal lengthening treatment does not adequately foster positive sexual esteem and genital self-image.

Abstract Image

患有 Mayer-Rokitansky-Küster-Hauser (MRKH) 综合征的妇女接受阴道延长术治疗的经历和性幸福感:访谈研究。
目的探讨患有迈尔-罗基坦斯基-库斯特-豪泽尔(MRKH)综合征的女性如何体验扩张或手术阴道延长治疗,以及她们目前的性福状况:设计:定性访谈研究:地点:丹麦:人群:年龄≥25 岁、确诊患有 MRKH 综合征的女性:对 18 名女性进行了半结构化视频访谈。访谈持续时间中位数为 92 分钟,并进行了数字录音、转录和匿名处理。采用主题分析法对数据进行分析:对妇女的经历进行定性分析:结果:分析确定了三个主题。首先,扩阴治疗的经验表明,扩阴是一项令人尴尬的常规工作,尤其是对于与父母同住、尚未开始性生活的青少年而言。一些人成功地延长了阴道,而另一些人则面临治疗失败,这导致了挫败感和自责。其次,新阴道手术的经验表明,手术过程极其痛苦,但结果是阴道 "正常大小"。一些妇女认为手术对她们的自信心造成了负面影响,所有妇女都强调了在选择手术前成熟的重要性。最后,目前的性生活和性幸福表明,许多女性的性生活功能良好,但由于认为自己的生殖器 "不正常",她们的性自信心和生殖器自我形象较低:结论:对于患有 MRKH 综合征的妇女来说,无论是通过扩张术还是手术进行阴道延长治疗,都有可能使阴道达到 "正常大小"。然而,根据妇女的经验,阴道延长治疗并不能充分培养她们积极的性自尊和生殖器自我形象。
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来源期刊
ACS Applied Energy Materials
ACS Applied Energy Materials Materials Science-Materials Chemistry
CiteScore
10.30
自引率
6.20%
发文量
1368
期刊介绍: ACS Applied Energy Materials is an interdisciplinary journal publishing original research covering all aspects of materials, engineering, chemistry, physics and biology relevant to energy conversion and storage. The journal is devoted to reports of new and original experimental and theoretical research of an applied nature that integrate knowledge in the areas of materials, engineering, physics, bioscience, and chemistry into important energy applications.
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