Report of the IDEOM Meeting Adjacent to the GRAPPA 2023 Annual Meeting.

IF 3.6 2区 医学 Q2 RHEUMATOLOGY
Gretchen D Ball, Danielle Yee, Arianna J Zhang, Lourdes M Perez-Chada, Vibeke Strand, Joseph F Merola, April W Armstrong, Alice B Gottlieb
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Abstract

The nonprofit organization International Dermatology Outcome Measures (IDEOM) is committed to improving the implementation of patient-centered outcome measures in dermatologic disease. At a conference adjacent to the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) 2023 annual meeting, the IDEOM Psoriatic Disease Workgroup presented updates on recent efforts in outcome measure advancement. Dr. Alice Gottlieb presented the preliminary findings of a study within the Mount Sinai Health System that aims to determine how well the IDEOM musculoskeletal (MSK) symptom framework, which uses the Psoriasis Epidemiology Screening Tool (PEST) and the Psoriatic Arthritis Impact of Disease (PsAID) instruments, functions in clinical settings. Drs. Joseph Merola and Lourdes Perez-Chada updated attendees on the IDEOM MSK-Q, a 9-item patient-reported questionnaire designed to measure the intensity and impact of MSK symptoms on the quality of life in patients with psoriasis (PsO) with or without psoriatic arthritis (PsA). Dr. Vibeke Strand summarized the Outcome Measures in Rheumatology (OMERACT) 2023 conference sessions. Dr. April Armstrong discussed the preliminary findings of a multicentered study designed to validate the 7-item Dermatology Treatment Satisfaction Instrument (DermSat-7) among patients with PsO. She also introduced the Psoriasis and Psoriatic Arthritis Treatment Satisfaction Instrument, a tool that seeks to capture the level of patient satisfaction with current therapy for PsO and PsA. This report summarizes the developments discussed at the IDEOM PsO and PsA research workgroups during the GRAPPA 2023 annual meeting.

GRAPPA 2023 年年会附设 IDEOM 会议报告。
非营利性组织国际皮肤病学结果测量(IDEOM)致力于改善以患者为中心的皮肤病结果测量的实施。在毗邻银屑病和银屑病关节炎研究与评估小组(GRAPPA)2023 年年会的一次会议上,IDEOM 银屑病工作组介绍了最近在结果测量推进方面所做努力的最新情况。Alice Gottlieb 博士介绍了西奈山卫生系统内一项研究的初步结果,该研究旨在确定 IDEOM 肌肉骨骼 (MSK) 症状框架在临床环境中的作用,该框架使用了银屑病流行病学筛查工具 (PEST) 和银屑病关节炎疾病影响 (PsAID) 工具。Joseph Merola博士和Lourdes Perez-Chada博士向与会者介绍了IDEOM MSK-Q的最新情况,这是一份由9个项目组成的患者报告问卷,旨在测量伴有或不伴有银屑病关节炎(PsA)的银屑病(PsO)患者MSK症状的强度及其对生活质量的影响。Vibeke Strand博士总结了2023年风湿病学结果测量(OMERACT)会议的会议内容。April Armstrong 博士讨论了一项多中心研究的初步结果,该研究的目的是在银屑病患者中验证 7 项皮肤病治疗满意度工具 (DermSat-7)。她还介绍了银屑病和银屑病关节炎治疗满意度工具,该工具旨在了解患者对目前银屑病和银屑病关节炎治疗的满意程度。本报告总结了 GRAPPA 2023 年年会期间 IDEOM PsO 和 PsA 研究工作组讨论的进展情况。
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来源期刊
Journal of Rheumatology
Journal of Rheumatology 医学-风湿病学
CiteScore
6.50
自引率
5.10%
发文量
285
审稿时长
1 months
期刊介绍: The Journal of Rheumatology is a monthly international serial edited by Earl D. Silverman. The Journal features research articles on clinical subjects from scientists working in rheumatology and related fields, as well as proceedings of meetings as supplements to regular issues. Highlights of our 41 years serving Rheumatology include: groundbreaking and provocative editorials such as "Inverting the Pyramid," renowned Pediatric Rheumatology, proceedings of OMERACT and the Canadian Rheumatology Association, Cochrane Musculoskeletal Reviews, and supplements on emerging therapies.
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