Assessing Health-related Quality of Life in Children with Chronic Kidney Disease in Indonesia: A Single Tertiary Hospital Study.

IF 0.5 Q4 UROLOGY & NEPHROLOGY

Saudi Journal of Kidney Diseases and Transplantation Pub Date : 2023-12-01 Epub Date: 2024-07-03 DOI:10.4103/sjkdt.sjkdt_231_22

Retno Palupi-Baroto, Braghmandita W Indraswari, Asal Wahyuni Erlin Mulyadi, Siti N Rusdhy, Kharisma N Prabowo, Kristia Hermawan

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引用次数: 0

Abstract

Health-related quality of life (HRQOL) is an important patient-reported outcome. However, HRQOL research in pediatric patients with chronic kidney disease (CKD) in developing countries is limited. This cross-sectional study involved children with CKD who attended Dr. Sardjito General Hospital between January 2017 and September 2018. In total, 82 child-parent pairs were enrolled. Total HRQOL scores were significantly lower in children with Stages 3a-5 CKD than in children with Stages 1-2 CKD in the child (69.89 vs. 82.12, P = 0.004) and parent questionnaires (72.26 vs. 81.20, P = 0.02). The scores for the physical, school, and social function domains were significantly decreased. This study showed that children with Stages 3a-5 CKD had significantly lower HRQOL scores compared with children in the Stages 1-2 CKD group. Multidisciplinary teams can provide patient-centered and comprehensive management to optimize HRQOL scores during childhood and in future adult life.

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印度尼西亚慢性肾病患儿健康相关生活质量评估：单一三级医院研究

健康相关生活质量（HRQOL）是一项重要的患者报告结果。然而，发展中国家对慢性肾脏病（CKD）儿科患者的 HRQOL 研究十分有限。这项横断面研究涉及2017年1月至2018年9月期间在萨吉托博士综合医院就诊的CKD患儿。共有82对儿童和家长参加了研究。在儿童问卷（69.89 对 82.12，P = 0.004）和家长问卷（72.26 对 81.20，P = 0.02）中，3a-5 期 CKD 儿童的 HRQOL 总分明显低于 1-2 期 CKD 儿童。体能、学业和社会功能方面的得分明显下降。这项研究表明，与 1-2 期 CKD 患儿相比，3a-5 期 CKD 患儿的 HRQOL 得分明显较低。多学科团队可提供以患者为中心的综合管理，以优化儿童时期和未来成年生活中的 HRQOL 分数。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Saudi Journal of Kidney Diseases and Transplantation UROLOGY & NEPHROLOGY-

CiteScore

1.00

自引率

0.00%

发文量

审稿时长

53 weeks

期刊介绍： Saudi Journal of Kidney Diseases and Transplantation (SJKDT, ISSN 1319-2442) is the official publication of the Saudi Center for Organ Transplantation, Riyadh, Saudi Arabia. It is published six times a year. SJKDT publishes peer-reviewed original research work and review papers related to kidney diseases, urinary tract, renal replacement therapies, and transplantation. The journal publishes original papers and reviews on cell therapy and islet transplantation, clinical transplantation, experimental transplantation, immunobiology and genomics and xenotransplantation related to the kidney. The journal also publishes short communications, case studies, letters to the editors, an annotated bibliography and a column on news and views.