Experiences of family carers in providing care to children with intellectual disabilities in India: A qualitative evidence synthesis

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-07-09 DOI:10.1111/jar.13269

Kumaresan Cithambaram, D. Corby, Shankar Shanmugam Rajendran

{"title":"Experiences of family carers in providing care to children with intellectual disabilities in India: A qualitative evidence synthesis","authors":"Kumaresan Cithambaram, D. Corby, Shankar Shanmugam Rajendran","doi":"10.1111/jar.13269","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Background</h3>\n \n <p>India has a significant prevalence of people with intellectual disabilities. Despite their higher prevalence, they receive poor support. Therefore, this review aims to explore the experiences of family carers in providing care for children with intellectual disabilities in India.</p>\n </section>\n \n <section>\n \n <h3> Methods</h3>\n \n <p>A qualitative evidence synthesis was undertaken, searching databases such as MEDLINE, CINAHL, Web of Science, and PsycInfo up to October 2023. Grey literature was also searched for unpublished studies, with two reviewers assessing methodological quality. Eleven eligible studies, mostly qualitative in design, were included in the review. The data synthesis followed a thematic approach.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>The synthesis found five themes representing family carers' experiences and perspectives. These were ‘resilience and acceptance’, ‘parental response’, ‘care dynamic’, ‘preparing for transition to adulthood’ and ‘parental advocacy’.</p>\n </section>\n \n <section>\n \n <h3> Conclusion</h3>\n \n <p>Family carers hold diverse views, while almost all consider providing care complex and challenging, with few positive experiences.</p>\n </section>\n </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1000,"publicationDate":"2024-07-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13269","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Applied Research in Intellectual Disabilities","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/jar.13269","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PSYCHOLOGY, EDUCATIONAL","Score":null,"Total":0}

引用次数: 0

Abstract

Background

India has a significant prevalence of people with intellectual disabilities. Despite their higher prevalence, they receive poor support. Therefore, this review aims to explore the experiences of family carers in providing care for children with intellectual disabilities in India.

Methods

A qualitative evidence synthesis was undertaken, searching databases such as MEDLINE, CINAHL, Web of Science, and PsycInfo up to October 2023. Grey literature was also searched for unpublished studies, with two reviewers assessing methodological quality. Eleven eligible studies, mostly qualitative in design, were included in the review. The data synthesis followed a thematic approach.

Results

The synthesis found five themes representing family carers' experiences and perspectives. These were ‘resilience and acceptance’, ‘parental response’, ‘care dynamic’, ‘preparing for transition to adulthood’ and ‘parental advocacy’.

Conclusion

Family carers hold diverse views, while almost all consider providing care complex and challenging, with few positive experiences.

Abstract Image

查看原文本刊更多论文

印度家庭照顾者照顾智障儿童的经验：定性证据综述。

背景：印度有大量智障人士。尽管他们的发病率较高，但得到的支持却很少。因此，本综述旨在探讨印度家庭照顾者在照顾智障儿童方面的经验：方法：通过检索 MEDLINE、CINAHL、Web of Science 和 PsycInfo 等数据库，对截至 2023 年 10 月的证据进行了定性综合。此外，还检索了灰色文献中未发表的研究，并由两名评审员对研究方法的质量进行评估。有 11 项符合条件的研究被纳入综述，其中大部分为定性研究。数据综合采用了主题方法：综述发现了代表家庭照顾者经验和观点的五个主题。这五个主题分别是 "复原力和接受"、"父母的反应"、"护理动态"、"准备向成年过渡 "和 "父母的倡导"：家庭照护者持有不同的观点，但几乎所有照护者都认为提供照护是复杂和具有挑战性的，很少有积极的经历。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.