A multi-informant qualitative analysis of desired features for an mHealth tool for youth living with HIV in South Carolina.

IF 2.7 3区心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL

Journal of Pediatric Psychology Pub Date : 2024-09-01 DOI:10.1093/jpepsy/jsae047

Sarah J Miller, Katherine E Weaver, Sayward E Harrison

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引用次数: 0

Abstract

Objective: Youth living with HIV (YLHIV) in the southern United States experience poor outcomes across the HIV care continuum and are at high-risk for virologic failure. This study used a qualitative, community-engaged approach to inform the development of a tailored mobile Health (mHealth) tool for YLHIV in South Carolina (SC).

Methods: Semistructured qualitative interviews were conducted with YLHIV in SC (n = 16) and their HIV care providers (n = 15). Focus group discussions (FGDs) were also conducted with HIV-focused community-based organization staff (n = 23). Interviews and FGDs queried desired components for a future mHealth tool tailored for YLHIV. Data were analyzed using a team-based rapid qualitative approach.

Results: Across informants, key themes emerged related to medical management of HIV, including a desire for connections with medical providers, appointment and medication reminders, and accurate HIV information. In addition, informants voiced a desire for mental health resources to be integrated into the app. Connection with HIV-positive peers also emerged as a key desire from youth informants. In terms of app design, informants emphasized the need for strict privacy practices, a youth-friendly design, compensation for use, and integration with existing healthcare systems.

Conclusions: mHealth interventions developed for YLHIV should meet the mental health and social needs of YLHIV in addition to their medical needs. In addition, the highly stigmatized nature of HIV requires careful consideration when designing digital tools-youth want their privacy prioritized, but also express strong desire for social support to help cope with the isolation and stigma of this chronic health condition.

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对南卡罗来纳州感染艾滋病毒的青少年所需的移动医疗工具功能进行多信息定性分析。

目的：美国南部的青年艾滋病病毒感染者（YLHIV）在整个艾滋病治疗过程中的治疗效果不佳，而且极易出现病毒学失败。本研究采用定性、社区参与的方法，为南卡罗来纳州（SC）的青年艾滋病病毒感染者量身定制移动医疗（mHealth）工具：方法：对南卡罗来纳州的 YLHIV（16 人）及其 HIV 护理提供者（15 人）进行了半结构化定性访谈。此外，还与关注艾滋病的社区组织工作人员（23 人）进行了焦点小组讨论（FGDs）。访谈和 FGD 询问了未来为 YLHIV 量身定制的移动医疗工具的理想组成部分。采用基于团队的快速定性方法对数据进行了分析：所有信息提供者都提出了与艾滋病医疗管理相关的关键主题，包括希望与医疗服务提供者建立联系、预约和用药提醒以及准确的艾滋病信息。此外，信息提供者还表达了将心理健康资源纳入应用程序的愿望。与 HIV 阳性的同龄人建立联系也是青年信息提供者的一个主要愿望。在应用程序的设计方面，信息提供者强调需要严格的隐私保护措施、适合年轻人的设计、使用补偿以及与现有医疗保健系统的整合。此外，在设计数字工具时，需要仔细考虑艾滋病病毒的高度污名化特性--青年希望优先考虑他们的隐私，但同时也表达了对社会支持的强烈渴望，以帮助他们应对这种慢性疾病所带来的孤独感和污名化。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Pediatric Psychology PSYCHOLOGY, DEVELOPMENTAL-

CiteScore

6.00

自引率

11.10%

发文量

期刊介绍： The Journal of Pediatric Psychology is the official journal of the Society of Pediatric Psychology, Division 54 of the American Psychological Association. The Journal of Pediatric Psychology publishes articles related to theory, research, and professional practice in pediatric psychology. Pediatric psychology is an integrated field of science and practice in which the principles of psychology are applied within the context of pediatric health. The field aims to promote the health and development of children, adolescents, and their families through use of evidence-based methods.