Informing knowledge translation for selective dorsal rhizotomy: A survey of Australian clinicians and people with lived experience of cerebral palsy

IF 1.6 4区 医学 Q2 PEDIATRICS
Jennifer A Lewis, Simon P Paget, Neil Wimalasundera, Meredith Wynter, Lani Campbell, Olivia S Lee, Kirsty Stewart, R Shah, Marnee J McKay, the Selective Dorsal Rhizotomy Knowledge Translation Advisory Team
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引用次数: 0

Abstract

Aim

Selective dorsal rhizotomy (SDR) is a neurosurgical intervention used to reduce spasticity in children with cerebral palsy (CP). There is minimal relevant, evidence-based information available for Australian families and clinicians. This study aims to investigate the knowledge of people with lived experience and clinicians regarding SDR, including how they currently access information and what information they seek.

Methods

Adults with CP, carers of children with CP and clinicians treating children with CP were invited to complete an online survey. Data regarding participant demographics, current knowledge and confidence in knowledge about CP and SDR, information source/s used and participants level of trust in these sources are presented as counts and percentages. Comparisons in knowledge between groups were analysed.

Results

A total of 114 surveys were completed: 63 clinicians, 48 carers, and 3 adults with CP. Eighty percent of clinicians were allied health professionals. People with lived experience were less confident in their knowledge about SDR compared to knowledge of CP (P < 0.001). Clinicians rated scientific research literature and the hospital team as the most useful and trustworthy information source. People with lived experience used a wider range of information sources including the internet, rating their community therapy team and other people with lived experience as the most useful.

Conclusion

This study identified a lack of confidence in knowledge of SDR for people with lived experience, likely due to a gap in accessible and readable evidence-based information. While both groups differed in how they access information, there was agreement that greater information about SDR is needed.

为选择性背根切断术的知识转化提供信息:对澳大利亚临床医生和脑瘫患者的调查。
目的:选择性背根切断术(SDR)是一种用于减轻脑性瘫痪(CP)儿童痉挛的神经外科干预措施。澳大利亚家庭和临床医生可获得的相关循证信息极少。本研究旨在调查有生活经验者和临床医生对 SDR 的了解,包括他们目前如何获取信息以及他们寻求哪些信息:方法:邀请患有脊髓灰质炎的成年人、脊髓灰质炎患儿的照顾者以及治疗脊髓灰质炎患儿的临床医生完成一项在线调查。有关参与者的人口统计学特征、目前对 CP 和 SDR 知识的了解和信心、所使用的信息来源以及参与者对这些信息来源的信任程度等数据均以计数和百分比的形式呈现。对各组之间的知识比较进行了分析:共完成了 114 份调查问卷:结果:共完成了 114 份调查问卷,其中包括 63 名临床医生、48 名照护者和 3 名成年脊髓灰质炎患者。80%的临床医生为专职医疗人员。与对脊髓灰质炎的了解相比,有生活经验的人对 SDR 的了解更缺乏信心(P 结论:本研究发现了对 SDR 缺乏信心的原因:本研究发现,有生活经验的人对 SDR 的知识缺乏信心,这可能是由于缺乏可获取、可阅读的循证信息。虽然两个群体在获取信息的方式上存在差异,但他们一致认为需要获得更多有关 SDR 的信息。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
2.90
自引率
5.90%
发文量
487
审稿时长
3-6 weeks
期刊介绍: The Journal of Paediatrics and Child Health publishes original research articles of scientific excellence in paediatrics and child health. Research Articles, Case Reports and Letters to the Editor are published, together with invited Reviews, Annotations, Editorial Comments and manuscripts of educational interest.
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