The experiences of individuals who have had gestational diabetes: A qualitative exploration

IF 3.2 3区医学 Q2 ENDOCRINOLOGY & METABOLISM

Diabetic Medicine Pub Date : 2024-06-09 DOI:10.1111/dme.15374

Anna Roesler, Kaley Butten, Pennie Taylor, Melinda Morrison, Marlien Varnfield, Elizabeth Holmes-Truscott

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引用次数: 0

Abstract

Aim

To qualitatively explore the experiences of individuals with Gestational Diabetes Mellitus (GDM) in Australia, and to recognise opportunities for leveraging digital health to enhance the support of GDM management.

Method

A cross sectional online survey assessed the experiences of individuals with GDM, the healthcare system and their digital health usage. Respondents (recruited via a national diabetes registry or social media) were adults receiving GDM care within Australia in the last 5 years, who responded to any of three open-ended questions (n = 815) exploring positive, negative and other GDM experiences. Thematic analysis was utilised, and themes were mapped to the socio-ecological systems framework.

Results

At a system level, themes related to (1) accessibility of care including the value of digital health and the inflexible or inconsistent perception of the (2) implementation of guidelines. At an interpersonal level, themes covered the need for adequate (3) health information provision, and (4) supportive care, as well as highlighting (5) experiences of stigma including a desire for greater awareness of GDM. Individual-level themes included: (6) differential barriers to accessing care; (7) negative emotional burden; (8) internalisation of stigma; (9) dietary freedom and social impact and (10) opportunity for change derived from having GDM.

Conclusion

Findings suggest a demand for more supportive, person-centred GDM care, improved information provision and individualised implementation of clinical guidelines. Such mechanisms may support reduced barriers to accessing care or negative psychosocial impacts of GDM. Though not central to the identified experiences, digital health tools may help address the need for optimised GDM care.

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妊娠糖尿病患者的经历：定性探索。

目的：从定性角度探讨澳大利亚妊娠期糖尿病（GDM）患者的经历，并认识到利用数字医疗加强GDM管理支持的机会：方法：通过横向在线调查，评估妊娠糖尿病患者、医疗保健系统及其数字医疗使用情况。受访者（通过全国糖尿病登记处或社交媒体招募）是过去5年中在澳大利亚接受GDM治疗的成年人，他们回答了三个开放式问题中的任何一个（n = 815），探讨了积极、消极和其他GDM经历。研究采用了主题分析法，并将主题映射到社会生态系统框架中：在系统层面，主题涉及（1）医疗服务的可及性，包括数字医疗的价值，以及对（2）指导方针实施的不灵活或不一致的看法。在人际层面，主题包括：(3) 需要提供充足的健康信息，(4) 支持性护理，以及强调(5) 耻辱体验，包括希望提高对 GDM 的认识。个人层面的主题包括(6)获得护理的不同障碍；(7)负面情绪负担；(8)污名化；(9)饮食自由和社会影响；(10)患 GDM 带来的改变机会：研究结果表明，需要更多支持性的、以人为本的 GDM 护理，改善信息提供和临床指南的个性化实施。这些机制可能有助于减少获得医疗服务的障碍或 GDM 带来的负面社会心理影响。数字医疗工具虽然不是已确定经验的核心，但可能有助于满足优化 GDM 护理的需求。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Diabetic Medicine 医学-内分泌学与代谢

CiteScore

7.20

自引率

5.70%

发文量

229

审稿时长

3-6 weeks

期刊介绍： Diabetic Medicine, the official journal of Diabetes UK, is published monthly simultaneously, in print and online editions. The journal publishes a range of key information on all clinical aspects of diabetes mellitus, ranging from human genetic studies through clinical physiology and trials to diabetes epidemiology. We do not publish original animal or cell culture studies unless they are part of a study of clinical diabetes involving humans. Categories of publication include research articles, reviews, editorials, commentaries, and correspondence. All material is peer-reviewed. We aim to disseminate knowledge about diabetes research with the goal of improving the management of people with diabetes. The journal therefore seeks to provide a forum for the exchange of ideas between clinicians and researchers worldwide. Topics covered are of importance to all healthcare professionals working with people with diabetes, whether in primary care or specialist services. Surplus generated from the sale of Diabetic Medicine is used by Diabetes UK to know diabetes better and fight diabetes more effectively on behalf of all people affected by and at risk of diabetes as well as their families and carers.”