The Protective Role of Self-Regulation for HRQOL of Adolescents with a Chronic Physical Health Condition.

IF 0.4 4区 医学 Q4 PSYCHIATRY
Lena P Walter, Julia M Göldel, Petra Warschburger
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Abstract

The Protective Role of Self-Regulation for HRQOL of Adolescents with a Chronic Physical Health Condition A physical chronic condition comes with many challenges and negatively impacts the healthrelated quality of life (HRQOL) of those affected. Self-regulation plays an important role in successfully coping with the demands of a chronic condition. In line with a resource-oriented approach, this study aimed to investigate themoderating effect of self-regulation on the relationship between disease severity andHRQOL. For this, 498 adolescents with cystic fibrosis, juvenile idiopathic arthritis, or type-1 diabetes aged of 12-21 years (M= 15.43, SD= 2.07) were recruited through three patient registers. Subjective disease severity, self-regulation (Brief Self-Control- Scale), andHRQOL (DISABKIDSChronicGenericMeasure)were examined at two time points (T₁ and T₂, one year apart). Cross-sectional analysis showed significant effects of subjective disease severity and self-regulation on HRQOL. Prospective analysis, in which HRQOL at T₁ was controlled for, revealed that disease severity only predicted emotion-related HRQOL at T₂; selfregulation emerged as a predictor for HRQOL subscales independence, emotion, inclusion, exclusion, and treatment. A significantmoderation effect of self-regulation was found on the relationship between disease severity and HRQOL emotion. Our results highlight the positive impact of self-regulation on quality of life, specifically in the context of chronic conditions and represent a starting point for prevention and intervention approaches.

Originalarbeiten / Original Articles.Die protektive Rolle von Selbstregulation für die gesundheitsbezogene Lebensqualität bei Jugendlichen mit einer chronisch körperlichen Erkrankung / The Protective Role of Self-Regulation for HRQOL of Adolescents with a Chronic Physical Health Condition.
自我调节对患有慢性身体疾病的青少年的 HRQOL 的保护作用 慢性身体疾病会带来许多挑战,并对患者的健康相关生活质量(HRQOL)产生负面影响。自我调节在成功应对慢性病需求方面发挥着重要作用。根据以资源为导向的方法,本研究旨在探讨自我调节对疾病严重程度与 HRQOL 之间关系的调节作用。为此,研究人员通过三份患者登记册招募了 498 名患有囊性纤维化、幼年特发性关节炎或 1 型糖尿病的 12-21 岁青少年(男= 15.43,女= 2.07)。在两个时间点(T₁和T₂,相隔一年)对主观疾病严重程度、自我调节能力(简明自控量表)和HRQOL(DISABKIDSChronicGenericMeasure)进行了调查。横断面分析表明,主观疾病严重程度和自我调节能力对 HRQOL 有显著影响。在对T₁时的HRQOL进行控制的前瞻性分析表明,疾病严重程度只能预测T₂时与情绪相关的HRQOL;而自我调节则是HRQOL子量表独立性、情绪、纳入、排除和治疗的预测因素。自我调节对疾病严重程度与 HRQOL 情绪之间的关系有明显的调节作用。我们的研究结果凸显了自我调节对生活质量的积极影响,特别是在慢性疾病的情况下,并为预防和干预方法提供了一个起点。
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来源期刊
CiteScore
0.50
自引率
16.70%
发文量
66
期刊介绍: Beiträge aus Praxis und Forschung, die sich mit Störungen der Entwicklung von Kindern und Jugendlichen sowie deren psychotherapeutischer Behandlung beschäftigen.
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