Dissemination innovation: Using found poetry to return study results to patients and partners facing cancer

PEC innovation Pub Date : 2024-05-07 DOI:10.1016/j.pecinn.2024.100286

Sara G. Bybee, Jacqueline Eaton, Bob Wong

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引用次数: 0

Abstract

Objective

Investigators should return study results to patients and families facing cancer to honor their research contributions. We created a found poem from transcripts of sexual and gender minority (SGM) couples facing cancer and returned it to study participants.

Methods

Participants were randomized to receive the found poem in text, text and audio, audio, or video format, completed dissemination preferences and emotion questionnaires, and open-ended questions about their experience receiving the poem.

Results

Participants preferred the format they received (n = 15, 75.0%), with text-only and combined text and audio formats evoking the greatest number of emotions (n = 13 each). The following categories and subcategories were identified: dyadic experiences (support, strength, depth, durability); dissemination preferences (timing, method); emotion (positive, negative); utility of the found poem (affirming; fostering reflection; not useful or inaccurate, and sense of community). SGM participants utilized positive emotion, affirming, and a sense of community with greater frequency than non-SGM participants.

Conclusion

Innovative approaches to dissemination are acceptable; providing choices in how and when participants receive results may increase engagement; and SGM versus non-SGM groups may describe dyadic experiences differently.

Innovation

Returning study results via found poetry is an innovative way to honor research participants facing cancer.

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传播创新：利用诗歌将研究结果反馈给癌症患者和合作伙伴

目的研究人员应将研究结果返还给面临癌症的患者和家属，以纪念他们的研究贡献。我们从面临癌症的性与性别少数群体（SGM）夫妇的文字记录中创作了一首诗，并将其返还给研究参与者。方法参与者被随机分配以文本、文本和音频、音频或视频的形式接收诗歌，填写传播偏好和情感问卷，并就他们接收诗歌的经历回答开放式问题。我们确定了以下类别和子类别：双人体验（支持、力量、深度、持久性）；传播偏好（时间、方法）；情感（积极、消极）；发现的诗歌的效用（肯定；促进反思；无用或不准确，以及社区感）。与非 SGM 参与者相比，SGM 参与者使用积极情绪、肯定和社区感的频率更高。结论创新的传播方式是可以接受的；在参与者接收结果的方式和时间上提供选择可能会提高参与度；SGM 与非 SGM 群体可能会以不同的方式描述二人体验。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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